Autoimmune diseases are extremely confusing. Not only are they hard to diagnose, (especially Lupus), but blood results can have false negatives when they should be positive and vice versa, yada yada. But one of the most confusing things we deal with everyday, is having no idea how we're going to feel a few hours from now, let alone tomorrow or the day after. Then again, it can be one of the nice things about it, because you might feel horrible in the morning, but 5 hours from now, you could be doing okay. It's also very confusing for our family members, because they'll say things to us like "well, you could do this yesterday", Or one week we may be walking with a cane or walker or even in a wheelchair, and the next they see us at the grocery with no walking devices, and think we're just faking for attention.
I'm sorry to hear that your family believes you are somehow bringing this upon yourself with diet -which is ridiculous, because Lupus is neither caused nor cured by diet.
It's important to know that you're not alone in this. I know sometimes it can feel like it, but thankfully, the forum really helps that feeling. There are so many here who are so kind and thoughtful, not to mention very understanding and good with advice (:
We're all here if you have any questions or just feel like ranting or talking to others.
I'm glad you've found the site, and just wanted to give you a nice welcome to the forum!
So, Welcome to the Forum!!!
Its not as active on the weekends just to give you a bit of a heads up, but it's great to have you here (:
One day at a time, one breath at a time... We can get through this.