I do not have this disorder, but I wanted to let you know that most people who have it, also suffer from another auto-immune disorder, such as Lupus, Fibromyalgia, Sjorgen's, IBS, and others. The painful bladder disorder in people with Lupus was known in the past as ‘lupus cystitis’, but is now generally referred to as PBS/IC. As with Lupus, there is a high predominance of women patients with PBS/IC.
As with Lupus and Fibromyalgia,many PBS/IC patients have a major problem with tiredness, this can be due to the fact that you are constantly awakened in order to go to the bathroom. This broken pattern of sleep makes you exhausted, irritable and depressed. Often, you may find that your bladder becomes particularly irritable/full the minute that you lie down in bed and this makes it hard for you to go to sleep. The constant need to urinate throughout the day is also exhausting because you never have time to relax. Chronic pain can also make you very tired because your body is constantly in a state of stress.
There is no simple treatment available to eliminate the signs and symptoms of interstitial cystitis, and no one treatment works for everyone. You may need to try various treatments or combinations of treatments before you find a regimen that works for you.
The following are some medications that may improve the signs and symptoms of interstitial cystitis include:
- Ibuprofen (Advil, Motrin, others), naproxen (Aleve, Anaprox) and other nonsteroidal anti-inflammatory drugs, to relieve pain.
- Tricyclic antidepressants, such as amitriptyline or imipramine (Tofranil), to help relax your bladder and block pain.
- Antihistamines, such as diphenhydramine (Benadryl, others) and loratadine (Claritin, others), which may reduce urinary urgency and frequency and relieve other symptoms.
- Pentosan (Elmiron), is the only oral drug approved by the Food and Drug Administration specifically for interstitial cystitis. How it works is unknown, but it may restore the inner surface of the bladder, which protects the bladder wall from substances in urine that could irritate it. It may take two to four months before you begin to feel pain relief and up to six months to experience a decrease in urinary frequency. Side effects include minor gastrointestinal disturbances and possible hair loss, which reverses when you stop taking the drug. Make sure your doctor knows if you're pregnant or planning to become pregnant.
I hope that this information has been helpful to you. Please let us know if you need anything further. I hope that you find some relief
Peace and Blessings
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