I was diagnosed when I was 16, but started feeling more sick around your daughters age. It was pretty devestating to feel like everything I'd wanted wasn't going to happen anymore. I was just starting to have an idea of what I wanted in life, and I felt like it was taken away. Im sure at any age its hard, but there so much going on between 12-18 that being told your really sick makes everything more difficult. For me it was always easier to pretend I wasn't really sick or think of my lupus as something outside of myself, not PART of me. Because of that thinking I still have a hard time with my pills sometimes. Im 18 and still get into fights with my mom about how often Im really taking my pills. I thought I knew what I was doing last time I secretly stopped taking my pills, and I ended up really sick and in and out of the hospital about 2 months later, missed about a month of school, and could barely walk. Even with all of that Im still not the best with my pills, but I remind myself that I dont want that happening again. Oh and if you asked my mom she would tell you I was a terror at that age, so Im sure age is a factor lol. My advice would be to tell her that sometimes when you go off your meds you think you're doing fine for awhile, but it ALWAYS catches up with you and you're much worse off then.
"A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard
Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.