I'm 18 and I've had it for 2 years and its still hard. I find myself throwing myself a pitty party sometimes and truely what helps me is coming here and talking it out with everyone. I cant talk to my family because they dont get it. They are as understanding as can be but they cant understand what its like to wake up in great pain, feel great in the middle of the day, come home and feel like you just want to pass out, then cant do anything they ask because you hurt so much. I have a hard time doing the whole "stay in the here and now" kind of thing but I've been trying not to think about my future. It scars the hell out of me sometimes to think that I could have something bad happen to me because of my lupus. I could worry about getting hit by a bus too, but I dont. I've been trying to take peoples advice and live now and not worry so much about what might happen later.
"A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard
Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.