Apart from the weird, little side effects I haven't had too bad a deal with the steroids. I lost a whole bunch of kgs last year when i was sick so didnt put on much weight when i started the pred. This time ive been on them for roughly 5 months and just finished 2 days ago. fingers crossed i can stay off them for a while, rheumy said the latest blood tests are looking good too which im pleased about. Rescheduled my appointment with him till i'd been off the steroids for a while just to see how i go. plaquenil has been amazing too, no side effects and really notice it when i forget to take a dose. dont think i'd ever willingly go off that one.
@Yolly - i know the feeling about not feeling with it, i hate writing reports at work these days because sometimes i just cant get my thoughts out. Just glad i finished my degree before i had all this!!
Diagnosed with SLE and Antiphospholipid Syndrom - June 2010