Page 1 of 2 12 LastLast
Results 1 to 10 of 14

Thread: Hi guys!

  1. #1
    Join Date
    Aug 2011
    Location
    SoCal
    Posts
    11
    Thanks
    0
    Thanked 4 Times in 4 Posts

    Default Hi guys!

    Hi I'm Brian, I'm 18 years young! and I have SLE. I remember back when I was a junior in high school this rash on my face appeared...at first I thought wow this sucks my face is so red but I thought it would clear...After having it for 6 months I told my mom I think we should get professional help....we went to a few doctors and some had no idea what it was, some even giving me creams to rash solutions....not satisfied we keep searching, finally I went to the doctor that my grandma goes to, sure enough he said he thinks it's lupus and he wants to refer me to a hospital in LA....and now It's almost the 2 year mark....The lupus is still in full effect and I'm taking medications....it was going good till I decided to stop taking medication and eating fast food now I am in college and I'm doing a diet to try and get the lupus to it's previous state.

  2. #2
    Join Date
    Jun 2011
    Location
    Indiana, USA
    Posts
    288
    Blog Entries
    1
    Thanks
    73
    Thanked 113 Times in 86 Posts

    Default

    Hey Brian (:
    You're right...Lupus does suck!!
    Have you looked into seeing a rheumatologist in order to get properly diagnosed? What medication are you taking?
    Unfortunately, Lupus is a progressive disease, so I dont think its surprising that its in a worse state now than it was previously... though it does suck.
    I just wanted to welcome you to the forum though, and say hi!
    What kind of symptoms are you experiencing, (If you feel fine telling us, of course), so we can get to know you better?
    Welcome to the forum (:
    One day at a time, one breath at a time... We can get through this.

  3. #3
    Join Date
    Oct 2010
    Posts
    1
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi, I am 53 Mother of one Son 21 and one Daughter 29. I am very happy to have found this forum! I have been able to continue working, although I pray everyday that I can continue for another year and a half so I can retire with insurance some Dr's think I should go on disability but I like working. I run the the warehouse for a school district with nine schools. I do all the ordering, and deliveries, shelving and anything else that is needed.

  4. #4
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,941
    Blog Entries
    1
    Thanks
    1,404
    Thanked 1,631 Times in 1,118 Posts

    Default

    hello brian,
    welcome to our cyber family.
    there are quite a few males here, so you are not alone.

    please continue your search for an answer.

    a rheumatologist is a doctor who specialises in the right area for your problems, i suggest you try to see one.

  5. #5
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,941
    Blog Entries
    1
    Thanks
    1,404
    Thanked 1,631 Times in 1,118 Posts

    Default

    hello pegarns,
    welcome to you also.

    i am glad you are able to continue working.

    i presume heavy lifting wouls be normal in oyur field.
    i have had to retire due to my illness.
    i was a heavy duty mechanic, working on minning machinery.
    but cannot even swing an axe for long now.

    i hope your strenght continues.
    glad you found us.

  6. #6
    Join Date
    May 2011
    Location
    Pennsylvania, USA
    Posts
    882
    Thanks
    409
    Thanked 272 Times in 196 Posts

    Default

    Hello Brian, welcome to our family. I found a wonderful balance with my meds and eating healthy. I am physically doing incredibly well as of late. I hope you can find all the answers you need to feel and look healthy. You are in good company on this forum.

  7. #7
    Join Date
    May 2011
    Location
    Pennsylvania, USA
    Posts
    882
    Thanks
    409
    Thanked 272 Times in 196 Posts

    Default

    Hello Pegarns, welcome to our family. I'm glad to hear that you like to work. Job stress wears me down! I have a fantasy that some wonderful, man would come along and sweep me off my feet and I would no longer have to work. Lol What are the odds that this will happen? Never mind don't answer that. Anyway, welcome to a great group of sweet people.

  8. #8
    Join Date
    Aug 2011
    Location
    SoCal
    Posts
    11
    Thanks
    0
    Thanked 4 Times in 4 Posts

    Default

    I really appreciate you guys welcoming me into this community! I'll continute to update you guys on my status!

    @steve I have already visited a rheumatologist and she's great! she's helped so much, I'm taking Prednisone, Plaqui(however you spell it), Cellcept(Mycophenlate*Generic*), Cyclosporine, Nifedipine, and enlapril...I think that's all. They have helped a great deal but then I ran into some moral & depression problems and decided not taking them was a better idea, but now i'm hapilly back on them and making a giant leap to beating this stupid diesease! I hope you guys all are doing well with your lupus

    @Lovedbyhim Thank you so much and i'd really appreciate if you shared some of these secret diets with me!

  9. #9
    Join Date
    Apr 2009
    Location
    Kentucky
    Posts
    1,165
    Thanks
    234
    Thanked 143 Times in 105 Posts

    Default

    Hey welcome =) I just started college too and recently hit my two year official lupus mark recently as well! I too have learned how bad it can be coming off the meds because I've done it too. There isn't really any special diet thats going to help your lupus unless there are certain foods that you notice make you feel bad. I have cut down on meat because for me I dont think my stomach is digesting it right. Im glad you've found us =) This forum has helped me so much the past two years they are like my family =)
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

  10. #10
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,741 Times in 1,211 Posts

    Default

    I want to welcome both of you to our WHL Family. This is a wonderful place with fantastic people. Please make yourself at home. Look around, read through old threads or make new ones if you wish. I look forward to getting to know each of you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •