I believe I posted on this forum a long time ago, but I'm in need of answers again.
I've been feeling bad for about 5 years now. In high school I suffered from severe chronic migraines and had lots of problems with endometriosis. I've dealt with both problems but have never felt quite like myself since then, which makes it hard sometimes to figure out if I might have a new problem or if the same issues are acting up again.
Now though I'm pretty sure something else is going on. I started to feel worse in November, my energy levels were declining significantly and I was feeling nauseaus a lot. My body became very achy, especially in the mornings and I was having frequent headaches.
No one has had a clear answer for me. I've been bounced around from primary care doctors, to endocrinologists, and gastroenteroligists. I keep having abnormal test results and tons of symptoms but no one seems to be able to connect it all together. I've had a few weird blood sugar levels, but they ruled out diabetes, ketones in my urine at several points, along with protein and white blood cells. High cholestoral, high sodium, low potassium, low B12, elevated cortisol...
My problem is each doctor seems to be picking out one specific test/symptom he/she finds important and ignoring everything else. 3 doctors have given me prescriptions for acid reflux medicine. No one seems to think my body aches and stiffness are important and I haven't been able to get anyone to take swelling on the left side of my back below the rib cage (Kidneys maybe?) seriously, nor the frequent swelling of my fingers.
I don't know that I have lupus although several friends and family members have suggested it as a possibility. I'm looking into conditions that affect the whole body though, since so many of my tests and symptoms seem unrelated.
Have most of you here had similar problems with getting doctors to pay attention to all of your symptoms? Should I find a new primary care doctor who does not have a specialty? Also, have you had trouble figuring out if feelings you are experiencing or symptoms worth describing to your doctor? For example, maybe my fingers swell because its hot or I haven't drink enough water. I'm intchy a lot, that could be a symptom of something, or maybe my skin is just dry...I think my problem is I've been feeling bad so long I'm not sure which feelings are "normal" anymore.
Thanks for any help and advice