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Thread: Little update

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    Default Little update

    Hi everyone, its been a while.

    My last appointment with the Rheumy was on July 27, he said I had fibro and also thought it could be early Sjogrens syndrome and sleep deprivation as I was falling asleep at my desk.

    Anyway, I left that job which I hated anyway and got something 20 mins drive from my house and I dont fall asleep at my desk any more but the pain is bad and my feet hurt so bad and my eyes are dry as a bone, I have been referred to an eye specialist and am on Systane Ultra drops every 30 mins and lacrilube at night and the GP has written me up for Celebrex - so far (fingers crossed, has not affected my asthma)

    On Friday just gone, I got a surprise call from the rheumy saying he 'owed me a phone call' - he was meant to call me back in July - he is a lovely man and although late, I was pleased he called me.

    I told him I had changed jobs but was no longer falling asleep at my desk but was however, reacting badly to the sun - just twenty minutes in the sun and my eyes were drier than ever, swollen and sore, my joints hurt and I would get very drowsy.

    He said I was due to have bloods done in 6 months but he wants me to go to hospital this week and be retested urgently, I told him I was also alot better now I wasnt working in 'wall to wall' fluro lights', and although we have them at work, they are not directly over my head.

    So I shall be having a whole host of bloods done and he has added DNA and some other bits to it and I shall get this done this week, and he is rechecking my kidneys and stuff.

    What I want to ask is I wonder how they may have changed since they were last done? On a weird note, I hope something shows up to give me answers, my bloods were last done in March.

    At least he called me and seems to be on the ball, I dont feel so alone now.

    Changing the subject, is anyone in contact with Terrie - AKA Perdiot Gem, I know she is no longer a member but I would love to hear how she is doing, she has been so kind to me.

    How are you all getting on, any news?
    xxxxxx

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    hi corella,
    thank you for the update, i was worried about you.
    your bloods will have changed from the medication.
    also hopefully not from your deseases.

    i have lupus mainly effecting my bloods, so i have a full round of tests before every visit.

    i am glad you have a more suitable job.

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    Ive only had two doses of painkillers though and that was yesterday and today, the eyedrops are a hassle but my eyes just dry out without them.

    I spoke too soon with the celebrex, second dose tonight and I feel sick - I dont think I will go a third dose, I actually feel quite crap. I need to get my cholesterol down as well, god knows why that is high - I have heard exercise will help so back to the gym I go.

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    I will keep my fingers crossed that all goes well for you. It is almost impossible to say how the bloods will be this time. So much can happen to change them. Make sure you ask them to send you a copy of the results. You need to keep a copy of all of your test results at home in case another doctor needs them. It saves a lot of trouble.

    Let us know how it goes
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Bloods can change very quickly. Just recently I had bloods done, then the same bloods at the end of the week. My inflammation markers had doubled within that time. It doesnt take much : )

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    Corella, I have been out of action for quite a while. I knew you left the job that you hated, but are you still working in the city? Or did you have to leave that job as well? I do hope your doctor can help you soon.

    Now that I am off work for goodness knows how long, I have the opportunity to catch up with you for lunch, however, I cannot walk, so I suppose we won't be catching up for quite some time. Oh well, one day we will see each other.
    Diagnosed with Lupus - 22 June, 2010

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    Hi Linda good to hear from you. I left the job I hated in the city and am now working in North Freo - much better, I still wear my 'lead blanket' and the pain is bad but lots of natural daylight and less fluro lights thank god.

    The pain has been a lot better today - the celebrex worked well but mucked up my asthma big time, my heart was racing last night - mind you I do get a fast heart anyway and today, my goodness I was peeing for Britain - god knows what my kidneys were doing, I didnt even need to drink much.

    I wont take any more though.

    Well I am off to Subiaco tomorrow to have my bloods done - god knows what they will show.

    We shall meet up Linda, you are NOR aren't you? I live about a 5 min drive from Freo but can get into the city, just need to get college out of the way and I will have more time, I can come to you. xxxxx




    Quote Originally Posted by Linda From Australia View Post
    Corella, I have been out of action for quite a while. I knew you left the job that you hated, but are you still working in the city? Or did you have to leave that job as well? I do hope your doctor can help you soon.

    Now that I am off work for goodness knows how long, I have the opportunity to catch up with you for lunch, however, I cannot walk, so I suppose we won't be catching up for quite some time. Oh well, one day we will see each other.

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