G'day people ... I'm out of hospital ... nearly 3 weeks later.
The EMG (muscle conduction test) showed that there was some abnormal activity in my arm, which they suspect will progress. So they are keeping a close eye on me to see how fast it will progress. Not a very good outcome, but I will do the best I can to do slow the progress down.
I had two muscle biopsies ........... right upper arm - 4cm.... left thigh - 10cm
I was put under a general, where they had to go in very deep to take some muscle out. Apparently there was a lot of bleeding. My arm is BLACK ... and I cannot use my thigh muscle. The doctors said that it will take me a lot longer to get over this because of my initial muscle weakness, pain, and declining health. I cannot walk without crutches, and I cannot walk without any supervision. My knee swells up big time quickly which limits me. Besides, the physios don't want my muscles to fatigue at all.
I have to wait 3 weeks for the test results to be completed. They are doing thorough testing at another hospital. I have been sent home with ensure plus (nutrition drinks for people that are malnourished). and heaps of pain killers. The pain killers are allowing me to sleep only slightly better, which was better than sleeping pills that did nothing at all. The good thing is that I am having some dreams now, which means at least I am having a bit deeper sleep (I think anyway). Oh and they didn't find any cancers, but they still don't know why I am loosing so much weight.
I am in a lot of pain at the moment, on heaps of pain killers, so also very tired as well. I will try to pop into WHl every now and then, but I cannot walk around very much because of the pain, and besides, I get into trouble for not resting enough. I will keep you updated with what is happening with me, which at the moment, isn't very much. I really hope you are are doing very well.
Diagnosed with Lupus - 22 June, 2010