Disibility Placard and Appointment
So I got my disibility stuff for my car in the mail today after lots of fun because my doctor obviously didnt know what she was supposed to be filling out. So now I've registered with disibility services at school and have the handicap parking thing soo thats all good. Im trying to get all set up for school this week. I only have like a week or so left before classes. I got a book today at Borders at their going out of business sale (booooo) thats about women and different autoimmune diseases. I think its pretty informative so far just looking through it.
I have a question btw, do any of you have a problem with your fingers pruning like crazy from like washing your hands or taking a shower? I told my doctor and she kind of laughed like she'd never had someone complain about that before. It makes my hands feel weird and feel kinda stuck. And my doc finally said I definately have some autonomic issues, but said "you've probably had some underlying autonomic problem since you were little" but isn't it more likely some of my first lupus symptoms were the autonomic ones? Seems likely to me. And if I have another "underlying" disease why isn't she doing anything for that? and she's always talking about how I have vascular problems but doesnt really say what. And this last time I went I felt like she was talking more to the doctor she had with her, because Childrens is a teaching hospital, than she was with me. My mom kind of agreed. She also basically completely dismissed my recent stomach problems. I told her everything from the past two months. She mentioned tests and stuff and was like but we've done that before right and I was like no we havent and then she just dropped it. So I have no idea if she was planning on doing those tests and was just stupid and forgot she mentioned them. At the end of my appointment I asked again what to do for my stomach and she said to keep taking prilosec and tums.
"A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard
Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.