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Thread: I'm a new member:living with lupus for over 11 years

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    Default I'm a new member:living with lupus for over 11 years

    I am so very glad I have found this site, it is heart warming to be in the company of others who understand what I have been thru, and what I am still going thru. I was diagnosed with SLE, Raynauds, and Sjrogrens at the age of 17, but it all started years before that.
    I just started a new med last week: Methotrexate, along with folic acid. I take it once weekly(the pills). That is what lead me to discover this site: I was so scared of this new med, that I wanted to find out what other people's experiences were with it.
    Well, I hope that everyone has a good day. I guess it's time for me to tackle(or attempt to) some house work!

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    Quote Originally Posted by LupusLady View Post
    I am so very glad I have found this site, it is heart warming to be in the company of others who understand what I have been thru, and what I am still going thru. I was diagnosed with SLE, Raynauds, and Sjrogrens at the age of 17, but it all started years before that.
    I just started a new med last week: Methotrexate, along with folic acid. I take it once weekly(the pills). That is what lead me to discover this site: I was so scared of this new med, that I wanted to find out what other people's experiences were with it.
    Well, I hope that everyone has a good day. I guess it's time for me to tackle(or attempt to) some house work!
    Hello Lupus Lady and welcome to WHL! I am so very glad that you found us. This is a fabulous group of people who will talk, vent, cry and support you. There is something wonderful about being in a place where people understand you. No matter how much healthy people try to be supportive there is no way that they can understand.

    Like you I take MTX tablets. You will read alot about it causing cancer but when you look at the breakdown it is less then a 5% chance which means it may not even have anything to do with them meds it was simply less then 5% of the people they were studying. I can't tell you that it is completely safe because I am not a doctor but, for me, I had to do something that may allow me to lower my steroids dose daily. The one thing that I do know is please do not take this drug if you are trying to become pregnant because it is often used as a "morning after pill". I have not had any trouble with it. I take mine at night so I sleep through the initial side effects. I may have a slightly upset stomach the next day if I don't keep food in there. Other then that I have had no issues at all.

    Please make yourself at home. We are glad to have you as a member of our WHL family!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Hi LupusLady! Welcome to the forums
    Like you, I was also so glad and happy to have found the forum and be in such wonderful company, and I still am today (:
    I really don't know anything about MTX, but I know folic acid is something that people who are anemic are missing - just like iron. I used to try to get folic acid from other sources, so I took some multivitamins, and tried to eat more foods with folic acid, which surprisingly isn't very hard, you just have to read labels. I found that granola had the highest count for my usual foods.
    Anyhow - i'm sure you're worried about the MTX and not folic acid, hehe. I"m glad that you've found us, and there are so many wonderful people here who can answer your questions and help you through tough times. I'm more of a helper than a question answerer, as I'm not on any drugs besides an anti anxiety and fish oil, and really have yet to be diagnosed. (Hoping to fix this soon). not to mention i'm super new to all of this.
    in any case, welcome to the forum! I'm so glad to have you (:

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    Welcome! I am also pretty new to this forum and just have been diagnosed by my primary. I don't see the specialist until the end of the month, so I haven't had much experience with "lupus" meds. Good luck.

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    Welcome! I've been diagnosed with lupus for 12 years and have been on Imuran (also an immunosuppressant like methotrexate) for 5 or 6 years. My daughter gives herself methotrexate injections. We both tolerate the immunosuppressants very well and neither of us would want to give them up. Just make sure you are careful about being around people who are ill, avoiding things like uncooked meat/fish and check in with your doctor if anyone in your household is getting vaccines with live virus (oral polio, MMR and the nasal spray flu vaccine are the ones that come to mind).

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    Welcome Lupus Lady, I found this site about a week ago and love the people and information I get here. I was diagnosed with SLE 15 years ago and take Methotrexate. I do the injections twice a week. I also found if I do the injections at night, makes the side effects not so noticeable.

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    i have been on mtx for just over a year.
    i take tablets and have no side effects.
    i take folic acid the day after mtx.

    tgal had some good information.
    remember the side effects are listed if anyone has suffered the effect. even if it is unrelated. if it is suffered by a person during the trial, it must be listed.

    mtx is used by so many people, and the side effects we realistically get is not as sever to many of us.
    in saying that, i know people, some on this site, who CANNOT take mtx.

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    Welcome Lupus lady. I do hope the med helps with little side effects. My sister was on it and she got very nauseated I'm sorry to say. Bless you on your journey.

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    Thank you everyone for the warm welcome! I am looking forward to getting to know everyone. I appreciate all the advice. I could certainly use it. Even with having lupus for so long, I am still learning all about it. Does anyone else have bad 'brain-fog'? Mine is getting to the point to where I just feel dumb, a lot of the time. I know that I really am not dumb, but my mind just doesn't want to cooperate with me! And my memory right along with it!

    I officially start the methotrexate injections today(so long as I don't chicken out). The pills just made my stomach hurt too much. Any pointers on self-injecting?! I don't think my husband likes the idea of me having to do this. But if it helps..................

    I hope that yal have a great day!

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    Quote Originally Posted by LupusLady View Post
    Does anyone else have bad 'brain-fog'? Mine is getting to the point to where I just feel dumb, a lot of the time. I know that I really am not dumb, but my mind just doesn't want to cooperate with me! And my memory right along with it!
    Oh, my dear, dear Lady.
    I know just what you need.

    http://forum.wehavelupus.com/showthr...Brain-Fog-When...

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