Okey so I'm still working, I"m lucky enough to work at a wonderful place who understands I'm sick, If I need to take a nap during the day my boss gave me permission to do so, even though I can't sleep! Anyway I've been toying with the idea of either going part time or applying for SS. If I go part time, I not only have to take a 20% paycut but have to pay 20% towards my medical coverage. Right now I have free medical coverage for all 5 of us, which is a BLESSING!

I think If I want to apply for SS, I shouldn't be working. I work with Attorneys who represent in SSI and SS cases, but im afraid to ask one of them. Even though I work for a great place don't want to risk putting rumors out that I cannot work and risk loosing my job for whatever reason.

The other thing is my husband hasn't been able to find a job for the last six months even though he's busting his butt at carreer link every other day, and doint jobs the rest of the days. Its not enough income,.
My mortgage is pretty low, so moving would not make sense, I have car payment and insurance and OHHH so many bills, This is frustrating me.

Ive been getting to work late everyday as I cannot seem to get up in the mornings., Not only do I have SLE, I have Fibro, gastroparecis, Avascular Necrosis on both knees and maybe my hip. I'll know definetely this week. I've had DVT's PE's, severe pericardis and pericardial effusions. Been in and out of the hospital about 6 7 times in the last year (although since I've been on plaquenil) im feeling a little bit better. Lupus symptoms seem to be under control. I need total knee replacements but they wont put my life at risk yet because I have blood clotting issues, so yeah I have to suffer daily with this stupid pain everyday. Aye Aye Aye, I don't know how much longer I can do all this!