Page 1 of 3 123 LastLast
Results 1 to 10 of 30

Thread: my friend the expert

  1. #1
    Join Date
    Mar 2011
    Location
    Montana
    Posts
    498
    Blog Entries
    1
    Thanks
    280
    Thanked 261 Times in 147 Posts

    Default my friend the expert

    I have a good friend, love her dearly and bless her heart she unknowingly can be such a source of amusement. Yesterday was no exception.

    She has a friend who has lupus and she herself may have Rheumatoid Arthritis (hasn't seen the rheumy yet). She is also well educated. Book smart that is. In her chosen college major of accounting. She and I haven't talked much this summer so yesterday was a catch up day and one of the topics was my lupus. Specifically Vitamin D. I'm on 5000 i.u's a day and was given specific orders by the rheumy to stay OUT of the sun, keep covered, wear sunscreen... you all know the drill. Well, my darling college edumacated (sp on purpose) disagrees with the rheumy who has been a rheumy for many, many years. According to her I need at least 20 minutes of direct sunlight on my skin each day. Of course I do! If I want to feel like I've been run over by a train, if I want that nuclear red glow, if I want to itch like I've rolled around in poison ivy, if I want a nasty headache then by all means, get my tan on!! Except I don't tan, I fry. She absolutely refused to try and understand. I explained to her that I had to replace the fluorescent light by my chair with a halogen bulb as the fluorescent made my face turn beet red. That being under the lights of certain chain stores made my skin turn red and my joints ache. She said the achy joints were from walking around the store. I told her my daughter was pushing me around in their courtesy wheelchairs, so yeah, there goes her argument. She went on about her friend this and her friend that and how her friend was dealing with lupus. I told her that her friend was lucky that she had lupus, lupus didn't have her and that each case is different.

    I told her about you all and the wealth of knowledge on this site. She asked me "what do THEY know?!" I told her that while she was surfing the internet about lupus, "they" were out living it and that each in every one of them has a Ph.D in living with lupus.

    Again, love her dearly, but some days we talk about the weather...
    "I'm going to get healthy or die trying"

  2. #2
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,742 Times in 1,211 Posts

    Default

    LOL I loved the post because I think we all know someone like that however, "Bless her heart" made me chuckle and I will show you why. There are many southern phrases that are like that one and Jon Reep hits the nail on the head. I hope you take this in the spirit that it is given because I say those things too! It just made me think of this and we all need a laugh


  3. The Following 2 Users Say Thank You to tgal For This Useful Post:

    ritzbit (07-27-2011), Saysusie (07-31-2011)

  4. #3
    Join Date
    Oct 2008
    Location
    California
    Posts
    1,213
    Thanks
    280
    Thanked 208 Times in 162 Posts

    Default

    I HAD one of those friends. She thought I'd be cured if I would just drink the juice supplement she was selling. I haven't seen her in nearly a year. We work in the same bldg and have known each other 24 years.

    Then again, she also takes her 11 year to a salon for highlights and then complains she is broke. Seriously, what are you teaching your daughter by getting highlights at eleven?????? I digress.

    Anyway, I completely understand what you're sayin' and those "friends" will never get it.

  5. The Following 2 Users Say Thank You to BonusMom For This Useful Post:

    Saysusie (07-31-2011), tgal (07-27-2011)

  6. #4
    Join Date
    Jun 2011
    Location
    Chicago
    Posts
    255
    Thanks
    27
    Thanked 82 Times in 69 Posts

    Default

    Everyone's an expert lol! TGal - yep "bless his/her heart" covers it all. I love to use that saying when all else stumps me.

  7. #5
    Join Date
    Apr 2009
    Location
    Kentucky
    Posts
    1,165
    Thanks
    234
    Thanked 143 Times in 105 Posts

    Default

    I have a dad who seems to think I'd be a lot better if I would just take iron supplements and exercise more. Though my doctor has never once said anything to me about needing more iron, my dad pushes that often. And once said that my mom probably didnt feed me right (I have lived with her my whole life). He tried to show my doctor my feet when I had vasculitis, like he was trying to explain to her what was wrong. He is a very smart man, who SHOULD have been more than he is but life happens you know? But just because life happens and you didnt become a doctor doesnt mean you get to walk around and act like one....Sorry about your friend. People drive me crazy when they think they know it all.

    And tgal, that video had me cracking up! SO TRUE lol
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

  8. #6
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    Everybody knows an expert it seems.

    Just a little background info on me-

    I have multiple college degrees as well as an extensive background in mechanical engineering. I am an expert in a couple of specific technical fields. I also have been living with SLE since 2004, and I have the experience of growing up with a parent who has SLE. That would be the amazing lady known as my Mom. I've even been a moderator at a really cool Lupus website that we've all come to know and love, for a couple of years now. I know quite a bit about Lupus.

    Am I a "Lupus Expert"?

    Heck no I'm not!

    I have a good working practical knowledge of the disease, and I know about some of the more technical aspects of autoimmune disorders, but I am far from an expert. I have known many people with far less education and practical experience than me who thought they were "Lupus Experts". I'm not, and neither were they.

    I've had to explain my philosophy on "Experts" to all of them. Many of them, to their credit, backed away from their pseudo-expert stance after hearing my rant. Some others though, will never admit to their huge gaps in knowledge on the subject, and they are the ones I just simply tune out. I put them on my "mental ignore list", if you will.

    Competent and experienced Rheumatologists, Neurologists, Opthamologists, Immunologists, and all the other relevant specialists, are the real Lupus experts.

    I'll get off of the soapbox now...



    BTW-Great thread you guys!

    "He beats puppies with kittens..." LOL!
    Last edited by rob; 07-28-2011 at 01:07 AM.

  9. The Following 2 Users Say Thank You to rob For This Useful Post:

    Nonna (07-31-2011), Saysusie (07-31-2011)

  10. #7
    Join Date
    Apr 2011
    Location
    Houston Area
    Posts
    180
    Thanks
    0
    Thanked 35 Times in 33 Posts

    Default

    This post made me laugh and remember. My daugher has dealt with Chronic Daily Migraines for 4 years and you can only imagine all the "advice" I have gotten over these years.

    Melanie

  11. #8
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,955
    Blog Entries
    1
    Thanks
    1,412
    Thanked 1,641 Times in 1,127 Posts

    Default

    an expert -

    an ex is a has been
    a spurt is a drip under pressure

  12. The Following 2 Users Say Thank You to steve.b For This Useful Post:

    Nonna (07-31-2011), Saysusie (07-31-2011)

  13. #9
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,742 Times in 1,211 Posts

    Default

    Quote Originally Posted by steve.bryce View Post
    an expert -

    an ex is a has been
    a spurt is a drip under pressure
    LOLOL That really did make me laugh out loud!

  14. #10
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    Quote Originally Posted by steve.bryce View Post
    an expert -

    an ex is a has been
    a spurt is a drip under pressure
    Good one Steve!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •