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Thread: brain fog understanding

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    I used to play music professionally. I've noticed in the last couple of years, however, that I've been forgetting lyrics to songs that I've played zillions of times, solos mid-riff, and o m g.. occasionally I'll feel confused all of a sudden and say wth was I just playing? It is embarrassing and makes me feel incompetent. I'm glad to know I'm not lost in the fog alone.

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    Quote Originally Posted by dawn patrol View Post
    I used to play music professionally. I've noticed in the last couple of years, however, that I've been forgetting lyrics to songs that I've played zillions of times, solos mid-riff, and o m g.. occasionally I'll feel confused all of a sudden and say wth was I just playing? It is embarrassing and makes me feel incompetent. I'm glad to know I'm not lost in the fog alone.
    Dawn I used to sing frequently at Bluegrass jams & now I have to read the words as I forge so very much. I can say I truly know what you miss.

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    We went to my daughter’s house for dinner tonight, and we were watching one of those make over shows. They took out the “thingy" and I was discussing how they never put the thing back that you hang out the clothes on - all eyes were on me, but I managed to remember what it was called eventually and said the clothes line. You could see everyone just relaxing a bit. This is happening more and more to me, but it was so much more obvious tonight. I pride myself in for hardly ever making mistakes, but to my husband’s delight, he has been counting how many times I make mistakes, it has become a sort of game for my whole family.

    It is a pity your family doesn’t make fun of you and your failings, it is so much more easier to live with than the nasty comments that your husband is making.

    I am really annoyed at myself because my new specialist was telling me something about cognitive disfunction, and my brain went on pause, and by the time I pressed the play button again, I accidentally pressed fast forward and missed the whole conversation. I think I might buy a dictaphone and hide it in my hand bag next time I have an appointment. But my luck, I will forget to press record, or worse still I will press play and some stupid embarrassing conversation will be played and I would forget how to turn it off - how horrid that will be.

    Sorry Rita (I think is your name) I have nothing worth while to suggest, except to offer you my support.
    Diagnosed with Lupus - 22 June, 2010

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by dawn patrol View Post
    I used to play music professionally. I've noticed in the last couple of years, however, that I've been forgetting lyrics to songs that I've played zillions of times, solos mid-riff, and o m g.. occasionally I'll feel confused all of a sudden and say wth was I just playing? It is embarrassing and makes me feel incompetent. I'm glad to know I'm not lost in the fog alone.
    I used to play piano, easily, like it just flowed, more often than not without any sheet music, and I could nail each song everytime. Now, the connections between my ears, my brain, and my fingers are so gummed up and slow, that I can barely play. I started playing when I was little, maybe 5 or 6 I think. Now that's more or less gone.

    I wish I'd never heard the word "autoimmune".

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    Ok yesterday was my daughter's birthday and I totally forgot about it until an hour ago. This is not funny & it breaks my heart. I never miss birthdays!

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    Is there any way that you can organise a surprise something for you, so she would never know that you forgot.
    Diagnosed with Lupus - 22 June, 2010

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    I am going to try to post to this thread because it hits so close to home but Please ignore any errors because my shaky hands don't do well chatting from my Phone. I am currently away from home and my computer, and will be for several days, but I coulnt let this thread go.

    I was a very smart, educated wOman who spent her days working with attorneys and was considered the best in my company working problem files. On top of that I had spent a couple of years working and holding several certifications and working with a company installing and supporting computers and networks. I couldearn anything quickly and seldom forgot anything if I wrote it down.

    Several years ago my memory started to go. It was very irritating and frustrating but I thought I was getting old. There are many thingsbi could tell here but I have to get back to wHat I am doing so I will jump ahead to now. I no longer drive. Not only because of the seizures but because I have no short term memory and I get lost in a town and area I have lived in 30 of the 40 plus years I have been alive. My family says that talking to me is like playing charades. I know what word I want to say but I can't 'find' it. We keep a white board in the kitchen area to write down important things I need to do because I have no short term memory left. I cod go on and on but I don't have time and I am sure you are bored

    Yes.... It is real and it is actully the part of this diseSe that hurt me and causes me the worst pain since my illness. Others think that it irritates them ... Try living it and knowing that you are half the person you were before

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    Quote Originally Posted by Linda From Australia View Post
    Is there any way that you can organise a surprise something for you, so she would never know that you forgot.
    It's too late I already apologized. Ugh! She knows I've been very sick & she has had morning sickness and an ER visit. Stress has been too high here. I will buy her a beautiful maternity top to make up for it. Sheesh!

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    Quote Originally Posted by tgal View Post
    Yes.... It is real and it is actully the part of this diseSe that hurt me and causes me the worst pain since my illness. Others think that it irritates them ... Try living it and knowing that you are half the person you were before
    Maybe it's just me but I think this is a symptom that we really need to vent about and often don't. We know we can vent about pain but The Fog seems kind of petty to gripe about. It isn't painful, it's just frustrating. So we tell ourselves. But it strikes at the core of our self-esteem. It used to just kill me to see the look on my boss's face. "What happened? You dropped 50 IQ points since I hired you." seemed to be going through her mind.

    You're still the same person. Your mind is no less than it was. Clearly, despite the memory issues, you're no less intelligent or capable. There's a wonderful essay by a gentleman who suffered a brain injury - I'll have to look it up - that caused him to lose his short-term memory in a severe way. Things that happen 2 minutes ago, gone. But he still writes. It takes huge effort. Hours just to write a single paragraph by constant repetition of each sentence and trying to keep connected to each thought. It's hellish for him but critical to his sanity in that he knows that his intellect is intact, while his memory is not. For him, he must keep in touch with the former. It's both shocking and inspiring to read. For me, it was eye opening.

    When I went back to school I doubted myself. I thought there was no way I could compete with the younger students either creatively or analytically. Too old and too foggy. And some days, that is true. I just have to shut down the PC and nap while they chatter away. But most of the time I can keep up and sometimes, even push past them. I surprised myself.

    You still are a smart, educated woman. I can tell that in the limited interaction I've had already. You just have this barrier in communication between the information and expressing it. Play with your brain. Moderating is one way of doing that already. I know that from moderating on an unrelated forum. It can be a challenge in itself. Especially on a collecting board. Some really entertaining people in the collecting world.

    Take care,
    KCat - always up for a game of charades.

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    Quote Originally Posted by KCat View Post
    There's a wonderful essay by a gentleman who suffered a brain injury - I'll have to look it up - that caused him to lose his short-term memory in a severe way. Things that happen 2 minutes ago, gone. But he still writes. It takes huge effort. Hours just to write a single paragraph by constant repetition of each sentence and trying to keep connected to each thought. It's hellish for him but critical to his sanity in that he knows that his intellect is intact, while his memory is not. For him, he must keep in touch with the former. It's both shocking and inspiring to read. For me, it was eye opening.
    I would be really interested in reading about his inspirational person. PLEASE PLEASE try to find his essay.
    Diagnosed with Lupus - 22 June, 2010

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