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Thread: interesting facts from my pcp

  1. #1
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    Default interesting facts from my pcp

    i had another tooth pulled by my pcp yesterday.
    yes a doctor who is also a dentist.

    i was discussing how my teeth have become brittle.
    i commented that lupus was effecting my teeth.
    his comment was that "he was more concerned that my teeth was effecting my lupus".

    he went on to discuss how in his resent research, it is believed that minor ailments have been shown to increase the likelyhood of a flare.
    (i am the only lupus patient my doctor has). (and he is researching for me).
    i am lucky to have him as my doctor.

    he then went on to explain that common ailments, (toothache, constant minor skin abrasions, and things like thrush), have increased the frequency of a flare, and usually the intensity also.

    he went through some of my history, and we discussed which of these were important factors.

    my thought was, there has been some discussion on whl, about different ailments.
    maybe these are contributing to some of our flares.

    food for thought, and discussion with your rhuemy / pcp.

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    Wow, that is really interesting, thank you for posting. And yes you are very lucky to have him as your doctor!

    I have had alot of problems with my teeth for years now, which isnt helped by the fact that I am terrified of dentists. Last time I tried to go through an extraction, I passed out and almost ended up in an ambulance after my pulse became very weak! That experience has increased my phobia. But in February I had to go back to a dentist because my face was really swollen and it turned out I had an abcess, and because I clench my jaws in my sleep, I put pressure on the abcess and it became infected. The abcess is now still there! Everytime I have an appointment to get the tooth pulled, theres an infection so they can't remove the tooth and have to give me antibiotics. I have been on 3 different types of antibiotics in the past few months which then resulted in oral thrush.

    I have been ignoring toothache for weeks now because I am just really scared of having to go to the dentist. I cry like a baby when I think about it.

    But reading what your doctor thinks has made me realise I really do need to face my fears and get my tooth pulled, i really dont want it causing my Lupus to flare.
    Diagnosed: Lupus (SLE), Inflammatory Arthritis
    Medication: 400mg Hydroxychloraquine daily, 40mg amitriptyline daily, 90mg Codeine daily (sometimes more), Ibuprofen and paracetamol.
    Vitamin D, Calcium Suppliments, Iron, Cod Liver Oil.

    So far 2 months free of prednisalone

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    Thank you for providing this information. I do know that there are some ailments and/or conditions that can contribute to a flare-up of our Lupus. In fact, the LFA suggests that we are very conscientious about our oral care for just this reason. So, your posts is a great reminder for us that we must not ignore any issues that we have with our teeth, our gums or our mouth in whole

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    Steve...thanks for adding the info as it all helps one way or another.

    So fare i've been lucky with my teeth and gums and when i attend the dentist i get the full check for cancer, ulcers etc..the main thing they say it's a shame i smoke.

    Terry

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    It's also good to note that dry mouth caused by Sjogren's can ruin your teeth and cause them to literally crumble. I've had dentists tell me for years that I wasn't taking good care of my teeth, blaming me for all of the extractions, root canals and crowns that I've had to get over the years. Now I've found that this is very common in those of us with Sjogren's.
    Taking Pilocarpine to increase saliva and using Biotene products have helped me a lot.
    Hugs,
    Marla

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    Marla,

    You've pointed something else out...taking (Pilocarpine to increase saliva) when i saw the blood specialist last year and he told me the sjogrens was working strong in my system i told him about having less saliva, dry gullet when trying to swallow and he asked if my heart was ok "YES I'M AN HEART SURGEON AND KNOW I'M DOING FINE" bloody idiot...i mentioned about a drug for that and is answer was there's not a drug which can help it.

    Gets me so angry this lot does and half of them call themselves specialists, they need shooting. xxxx

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    Nixxie, you need to get your teeth removed anyway. They tried that 'cant do it til the infection is gone' rubbish on me too. So I went to a private dental practise and he pulled it right then and there. Infection GONE. You cant get rid of an infection if there is CONSTANT aggravating factors. And by continuing to take a bunch of antibiotics you arent doing yourself or anyone else any favours.

    I have exposed roots on some of my back teeth at the moment but cant have anything done until I have money, so never : (

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    Interesting post, Steve. I think it's important to think of the body and autoimmune disease in particular as this complex set of inter-dependencies. Very hard to separate causes and effects as a result. illnesses trigger flares, flares induce illnesses, etc. I've been reading a book call The Inflammation Syndrome and trying to adjust my diet based on many suggestions within it. Reducing my nightshades and legumes as well as omega-6 fats while increasing my Omega-3 fats and other vitamins and supplements. I have had some improvements. I love my nightshades so it's tough. But I know when I have a bug, I feel much worse than the average person. I know when my hormones are out of whack, so is everything else. And the list goes on. So it wouldn't surprise me at all that a bad tooth or skin problem would aggravate our condition just as our condition aggravates the skin and teeth.

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    Quote Originally Posted by magistramarla View Post
    It's also good to note that dry mouth caused by Sjogren's can ruin your teeth and cause them to literally crumble. I've had dentists tell me for years that I wasn't taking good care of my teeth, blaming me for all of the extractions, root canals and crowns that I've had to get over the years. Now I've found that this is very common in those of us with Sjogren's.
    Taking Pilocarpine to increase saliva and using Biotene products have helped me a lot.
    Hugs,
    Marla
    I will try to maintain my cool. I don't have Sjogren's but my meds do dry me out. My dentist knows this and is understanding. She had a new, very young, hygienist who worked on me last time. My teeth are in good shape but I get tartar and nothing I can do about that regardless of how much I brush and floss and use Biotene She asked if I floss. I said, "Every day." "Really?" she asks. As if I'm lying. All I could think was, Look, I'm a 47 y.o. woman and you're what, 20? and I've been seeing this dentist for 20 years and you're going to talk to me like I'm a 12 y.o.?

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