I have the same thing. The back of my hair stays soaking well because my body temp is so hot while my feet feel like ice cubes.
Bonusmom, please let us know what happens at the doctor. I know that worrying about your child is the worst thing thing in the world. I hope you get the answers that you are looking for
Tgal-the son that I referred to in this post has Raynaud's, a submucous cleft palate and hearing loss since birth, as well as other goodies. The son that is being worked up now is my eldest child-always healthy and hungry as a horse. We're awaiting test results and specialist appts. I will keep everyone updated. Thanks for remembering