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Thread: Is my head all in my head?

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    Unhappy Is my head all in my head?

    For ages now, since last year I think, I have been getting my sentences the wrong way round - words totally back to front said so fluently that you can barely notice it. I notice it the minute it leaves my mouth and think 'Jesus I hope noone heard that' - except my Dad picks up on it.

    If I go to a toilet in a pub, I forget which direction I have come in and sometimes when I drive home I panic as I suddenly dont recognise where I am and then it comes back to me.

    This morning I forgot which train stop I should get off at and ended up getting off at Perth instead of the station before it, yes
    the 20 min walk was good for my thighs but left me totally exhausted and my muscles so weak I could barely walk properly in the office and the exhaustion that followed that bout of exercise was crippling.

    I have also booked an emergency appointment with the optician as my vision is blurry and my eyes are so dry and puffy so he is going to check them out and hopefully give some direction to the rheumy that I am due to (finally) see on Wed next
    week.

    I forget what words I want to say, I cant even compare it to the inability to concentrate because my mind goes blank when I want to remember simple words or a direction of where I am meant to be walking/driving.

    What is happening to me? I dont want to be ill, I want my bloods to be normal but I want to know I am not going mad. How can this happen to my head or is it all in my head? It comes out of the blue, I could be explaining something and I cant remember.

    Today at work I was doing some scanning which I do every day and several times a day and I forgot how to do it, I stared at the photocopier for ages and a girl asked if I was OK and I made a joke of it so she helped me.

    And my bloody feet are sore again and I have just taken panadene forte, the steroids stopped the pain for a bit but now its
    coming back.

    You guys are the only ones that understand, you are like my second family. I cannot wait till next Wednesday and if this
    rheumy treats me like the last one, I shall remove my bra and throttle him with it.

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    n.mac (07-19-2011)

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    Hello Sam,

    I'm hoping myself you have'nt got Lupus but it could possibly be an Autoimmune Disease linked to your symptoms and roll on next wednesday and for christ sake when that day comes keep carm Sam and don't worry about him being in the same department as the other one, as he's the head one you said and you may get furthur but i do suggest what you've written here...copy and paste into your notepad on your pc and save it as a file and if you can't on yours another member of family or friends who can print it off because what you've put is'nt explaining something to the specialist nothing is.

    Everything your going through we all experience and sometimes it can make you get mad with yourself because it makes you feel like your nuts or losing the plot but you are experiencing what a large majority of us go through.

    Hugzzzzzzz to you Terry xxxx

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    Yep I am going to make notes that is for sure.

    I am quite proud of myself tonight as I have managed to do some homework, I am still hugely behind and the deadline is approaching purely for me to pass but little steps and all that.

    I also have a picture of the blood spots on my thighs for him. I have the rash on my neck but not on my face so not sure if its worth photographing and my eyes are dry, my lips even more so but not so much the inside of my mouth. Oh and I am a bit dry 'down below' which I am SO not happy about.

    Quote Originally Posted by Peridot20_Gem View Post
    Hello Sam,

    I'm hoping myself you have'nt got Lupus but it could possibly be an Autoimmune Disease linked to your symptoms and roll on next wednesday and for christ sake when that day comes keep carm Sam and don't worry about him being in the same department as the other one, as he's the head one you said and you may get furthur but i do suggest what you've written here...copy and paste into your notepad on your pc and save it as a file and if you can't on yours another member of family or friends who can print it off because if this what you've put is'nt explaining something to the specialist nothing is.

    Everything your going through we all experience and sometimes it can make you get mad with yourself because it makes you feel like your nuts or losing the plot but you are experiencing what a large majority of us go through.

    Hugzzzzzzz to you Terry xxxx

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    Peridot20_Gem (07-19-2011)

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    I deal with what your dealing with, I hope you don't have Lupus. I thought I don't have this even my doctor told me I don't have the common sign. But after all of the test come back three of them Postive for Lupus. I know my life was over, I was hoping I found that pill that give back my legs, hands, arms ETC. But I have know understand it and I won't let Lupus win and trying to get my life back. I accept I have 4 legs ( Crutches) I have my chair for my shower. I learn to live with lupus with a little help.

    Please understand what your going though isn't in your head, I had many doctors tell me that and I give up for years. Tell I search for what was wrong with me. Now after 7 years I know what it is and I can try to move on.

    Hugs
    Liz

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    Quote Originally Posted by Corella View Post
    Yep I am going to make notes that is for sure.

    I am quite proud of myself tonight as I have managed to do some homework, I am still hugely behind and the deadline is approaching purely for me to pass but little steps and all that.

    I also have a picture of the blood spots on my thighs for him. I have the rash on my neck but not on my face so not sure if its worth photographing and my eyes are dry, my lips even more so but not so much the inside of my mouth. Oh and I am a bit dry 'down below' which I am SO not happy about.
    Oh i am pleased you taking notes and what you've just put in your thread as explained in one go, what you've been explaining on and off for a while but never really throwed it together like this one.

    Nice to hear you've managed to catch up on at least some work but that's better than nothing Sam at least what you've done as helped.

    Oh all these pic's will go a long way and if you are taken seriously and fingers crossed for you mate...lets hope a Dermo gets involved along the way.

    Terry xxx

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    Have you looked at info about Sjogrens? Some of your problems made me think of that. http://www.sjogrens.org/home/about-s...drome/symptoms I hope you have luck at your appointment and get some help with all the things you have going on right now!
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

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    Hello Sam,

    How you feeling now and did you look at the link about sjogren's as the disease is'nt all about dry eyes and mouth, there's alot more to it.

    Terry xxx

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    Quote Originally Posted by Corella View Post
    For ages now, since last year I think, I have been getting my sentences the wrong way round - words totally back to front said so fluently that you can barely notice it. I notice it the minute it leaves my mouth and think 'Jesus I hope noone heard that' - except my Dad picks up on it.

    If I go to a toilet in a pub, I forget which direction I have come in and sometimes when I drive home I panic as I suddenly dont recognise where I am and then it comes back to me.

    This morning I forgot which train stop I should get off at and ended up getting off at Perth instead of the station before it, yes
    the 20 min walk was good for my thighs but left me totally exhausted and my muscles so weak I could barely walk properly in the office and the exhaustion that followed that bout of exercise was crippling.

    I have also booked an emergency appointment with the optician as my vision is blurry and my eyes are so dry and puffy so he is going to check them out and hopefully give some direction to the rheumy that I am due to (finally) see on Wed next
    week.

    I forget what words I want to say, I cant even compare it to the inability to concentrate because my mind goes blank when I want to remember simple words or a direction of where I am meant to be walking/driving.

    What is happening to me? I dont want to be ill, I want my bloods to be normal but I want to know I am not going mad. How can this happen to my head or is it all in my head? It comes out of the blue, I could be explaining something and I cant remember.

    Today at work I was doing some scanning which I do every day and several times a day and I forgot how to do it, I stared at the photocopier for ages and a girl asked if I was OK and I made a joke of it so she helped me.

    And my bloody feet are sore again and I have just taken panadene forte, the steroids stopped the pain for a bit but now its
    coming back.

    You guys are the only ones that understand, you are like my second family. I cannot wait till next Wednesday and if this
    rheumy treats me like the last one, I shall remove my bra and throttle him with it.
    Hi there,

    I understand exactly what you are going through. I "lose words" so often that my daughter says it is like playing charades around here. I KNOW the word I want but I can't "find it". When I was still working I would occasionally just yell a word at for no reason. Sitting at a table with my daughter one day and I yell out "YELLOW". everyone looked around and I had no idea why I did that!

    Things that I used to do daily I can no longer remember how to do. I can't drive anywhere (not only because of the seizures this lovely disease gave me) because I can't find my way back. I have been in the middle of a grocery store and began to panic because I don't know where I am or what I am looking for.

    Please make sure you go over everything with your doctor. You really need to see a neurologist to discuss the cognitive issues but, until then, tell any doctor you go to!

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    Hihi - just wanted to pop in quickly and say that that sounds like brain fog to me (: It's scary, and annoying, and infuriating... but amusing at times as well. I figured i'd drop you the link to the "you know you have brain fog when.." forum, so you can see how many others deal with the same thing - plus it's pretty funny to look at, hehe.
    http://forum.wehavelupus.com/showthr...Brain-Fog-When...

    Best of luck on all your tests...remember, getting diagnosed is just getting a name for the problems you already have. So even though it can be super scary, try not to freak out too much.

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    hi, I certainly know how you feel. At times I think I must sound like a blithering idiot,very very frustrating.
    I'm not sure how much is lupus related,med side effect,old age(boy fifty sounds so much older than forty.nine) or just my personality.
    But if it is any comfort it seems to be something we all encounter-just this morning i was driving to work and i realized i was going the wrong way,i had missed my exit-now i don't go the same place every daybut I never used to have problems like this in the past.

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