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    Default Hello from NC

    As much as I hate to admit it, I have Lupus. It has disrupted my life so badly. Such a horrible disease. Just looking for support from others.

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    Hello busdrivr,

    Welcome to our lovely large family of WHL and so lovely to have you with us.

    There's loads of threads to venture through and learn more of the conditions linked with it and if you need to vent come on anytime as there's always someone who will answer in due course.

    Lupus is an hard Disease to handle at times, i myself i find it hard and very flustrating and the water works are often going but concerning support you'll definitely get that from us.

    It would help us if you don't mind to help more...if you could tell we more of your history and what you've got linked with Lupus.

    Hugs Terry xxx

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    busdrivr (07-15-2011)

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    I wanted to take a moment to say hello and welcome you to WHL! While I am so very sorry you have this disease I am really glad that you found us. This is a wonderful place full of fabulous people who will support you in whatever ways that you need as you move down this new path. Feel free to make yourself at home. There are so many threads full of fabulous information as well as places you can posts questions or comments of your own.

    I look forward to having you with with us and I look forward to getting to know you

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    busdrivr (07-15-2011)

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    Hello busdriver, welcome to a place where you can vent and feel validated.

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    busdrivr (07-15-2011)

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    hi,and welcome.
    you say it has disrupted your life...

    do you still drive buses?

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    busdrivr (07-15-2011)

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    No, no more driving busses for me. I no longer can work. When I wake during the night I cannot feel my feet and they are so weak, don't know if they will hold me up. I have a tendency to fall quite frequently. My rheumatologist says I have had this disease for about 4 years. Painful joints, fever, rash, you name it, I think I have experienced a little of everything. Tried the Plaquenil with no results, now on the methotrexate but had to decrease the dosage because it was making me very sick. What next, I wonder. My children are devastated by this also, knowing I have always been the type of person that never slows down. Unfortunately, Lupus has slowed me way down. I don't think my husband understands how dreadful this pain really is. Thanks for being here for me.

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    Hi busdriver (: Welcome to the forum. I'm sorry it took me so long to reply to your post. I'm still recovering from being out and busy on friday. Oh how this disease effects us. I'm sure you know what I mean - i've never before taken so long to "recover" from just going out and being with people.
    This is a great forum for support (: Feel free to join in or start a rant post. The people here are so wonderful and supportive and truly understand what you're going through.
    Welcome again (:

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    Yup, I know how you feel about going out. I go to church twice on Sunday and on Monday I cannot do a thing.

  14. #9
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    Quote Originally Posted by busdrivr View Post
    As much as I hate to admit it, I have Lupus. It has disrupted my life so badly. Such a horrible disease. Just looking for support from others.
    I am in Raleigh, NC and agree with you. I had to quit my job and at that time did not have a true diagnosis. I am looking for a local support chapter in NC.

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    Hello busdrivr,

    How are you feeling?? and i hope your day is a less pain free one....please keep we updated on how your feeling.

    Terry xxx

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