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Thread: PCP has suggest rheumatologist..thinking it may have been Lupus all along...rash ?s

  1. #11
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    Hi Leslieann,

    Do you get your blood work today because of the different country's it's hard knowing if your infront or behind.lol

    Please keep we updated and i bet you can't wait yourself unless you've already had them.

    Love Terry xxx

  2. #12
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    I'm having it drawn in the morning....tomorrow morning July 5th =)

    not sure how long it takes to get the results but my PCP has a website and I can see the results as soon as they get them

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    Peridot20_Gem (07-04-2011)

  4. #13
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    Quote Originally Posted by leslieann226 View Post
    I'm having it drawn in the morning....tomorrow morning July 5th =)

    not sure how long it takes to get the results but my PCP has a website and I can see the results as soon as they get them
    Leslieann,

    Oh well it's the 5th here now and 01:38am in the morning.lol

    There's a few member's who can get there's on the website...i know my results through letters being sent to my GP to keep him updated but i've asked for print outs and my s.d of a rheumo won't do it but i'm lucky to have a great Dermo who's not pleased with him at th mo.lol

    I'll wait to see what your results am mate. xxx

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    leslieann226 (07-04-2011)

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    please ask for a copy of your results.
    keep them, as they are your first complete set.
    they are a good base line to compare all of your other results to.

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    tgal (07-06-2011)

  8. #15
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    Hi Lesieann,

    Please let us know how your blood works have gone and keep we updated please. xxx

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    leslieann226 (07-05-2011)

  10. #16
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    thanks Steve...I did request a copy be sent to me. The lab tech said they may be done by tomorrow but most likely, thursday the 7th, so now I wait. I'll share with you guys as soon as I know.

    I have all these things I'm learning that might have been signs all along. I've had night sweats every single night for at least 10 years, protein in my urine on and off for many, many years and severe heat intolerance. How did no doctor every put these things together?? Frustrating to say the least.

    Here's a photo of the rash I had on one of my knees....it's the pink/brown dots, not the spider veins. (I've had the veins since I was 15 years old) it's not the clearest photo, but it gives some idea of what they looked like. Most are gone now after flaking off.

    Last Day of 5th grade 039.jpg

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  12. #17
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    Hi Leslieann,
    Welcome to WHL. You are lucky to have a doc who is "on top of things". You have been given some good advice. Keep good records.
    I hope that you are lucky, and soon get a correct diagnosis.
    Hugs,
    Marla

  13. #18
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    Quote Originally Posted by leslieann226 View Post
    thanks Steve...I did request a copy be sent to me. The lab tech said they may be done by tomorrow but most likely, thursday the 7th, so now I wait. I'll share with you guys as soon as I know.

    I have all these things I'm learning that might have been signs all along. I've had night sweats every single night for at least 10 years, protein in my urine on and off for many, many years and severe heat intolerance. How did no doctor every put these things together?? Frustrating to say the least.

    Here's a photo of the rash I had on one of my knees....it's the pink/brown dots, not the spider veins. (I've had the veins since I was 15 years old) it's not the clearest photo, but it gives some idea of what they looked like. Most are gone now after flaking off.

    Last Day of 5th grade 039.jpg
    Hi Leslieann,

    So more waiting mate for your tests but thanks for letting we know.

    I've just been looking at your pic...for a start off your suffering with broken blood vessels which can disturb the heat to your body only the same as Raynauds people and DVT breaks the vessels like that, now that pic's got my imagination going.

    Luv Terry xxx

  14. #19
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    Leslieann,

    Just been looking and it looks like dermatitis mate...i can't say one 100% as i'm not a doctor and it goes brown when drying up before flaking off, you should be seeing a Dermo really to help you get it treated. xxx

  15. #20
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    Well, I just looked online and it says "negative" with no numbers next to "Ana Ifa,W/Refl Titer/Cascade"

    I'm assuming when I get my copy in the mail, the actual numbers with be there...not sure why they aren't online.

    Not sure what to do now. I wrote to my doc so I'll wait and see what she thinks. The swelling was terrible when I woke up this morning and I can't understand that. Why would it get worse while I'm lying down?? makes no sense to me.

    I have an appointment next wednesday with the knee specialist to begin the process of the workup for the knee replacement. I'm thinking he may have some helpful insight. We shall see, I suppose.

    Frustrated right now...and in pain =(

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