I have been diagnosed a year now. I am still learning what is and what is not a flare. I have also been waiting for that wonderful thing called REMISSION to appear in my life. At my latest Rheumy appointment I was told that my Lupus was under control, however, I feel even worse now than when I was first diagnosed. I thought I was still in a flare, but apparently I am not. The doctors are finding heaps of other things wrong with me, probably because Lupus has run over me and left me there in a heap.
Though my Lupus is under control, I still have Lupus symptoms. I burn easily in the sun, get joint pain, rashes, fatigue, sleeplessness at times, etc.... Some people do have the great pleasure of having a true remission, but most people here just experience some of their symptoms are less severe. Some people come here for support and when they are in remission they go off into the world and have a wonderful life, Lupus symptom free. And then when they start having a flare, they come back to WHL.
There are a core group of people who stay here on WHL whether their Lupus is active or inactive. Many people are house bound, and at times we are their limited contact with the world out there. Some of these people can be classified as "Vampires" because they can only surface at night time because the sunlight does so much damage to them. Please feel free to research as much as you can, I really hope that you find that you don't have Lupus, this disease is terrible, but we are all wonderful people, and have many stories to share. In this forum you will find that we can be crying one minute, laughing at another, angry the next, then giving cyber hugs. When I say angry, I don't mean with other members, it is mostly about doctors not listening to our complaints.
Diagnosed with Lupus - 22 June, 2010