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Thread: Just Introducing Myself

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    Smile Just Introducing Myself

    Hi there!
    I'm new to the forum - really, new to forums in general - and the little yellow help bubbles have guided me here, to the introductions page.

    I haven't been sick very long - just since November of last year, but in the time that I have been sick it's certainly knocked my life on its butt. I haven't been diagnosed yet, beyond being told by a family doctor that I had a connective tissue disorder / autoimmune disease.

    From the research that I have been able to do, I've found the top contenders to be Lupus, Sarcoidosis, or MCTD. Of all diseases however, I feel like Lupus seems the most like me.
    I stumbled across this site looking for local support groups for something like me (there weren't any), and immediately connected after browsing site after site for a group for either all autoimmune, or specific AI disorders.
    I really hope you don't mind that I've joined when I'm not quite sure if I actually have your namesake, it just seemed to be a place where I didn't feel like quite as much of a freak, hehe. (:

    I obviously don't have much experience or knowledge to give, being that I'm so new to all of this, but I do have plenty of emotional support to offer, and an abundance of time to chat!

    Thanks for letting me be a part of this site, I'm looking forward to learning more,
    -Elo

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    Welcome to WHL =) This place is so welcoming and it doesnt matter that you dont know for sure if you have lupus or some other disease. People here are so nice and alot of them have those things too; autoimmune diseases love company. I hope you find what your looking for here!
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

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    Elo (07-01-2011)

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    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    First let me welcome you to WHL. This place was made for people that have been diagnosed, people waiting for a diagnosis, people trying to figure out what they have as well as the friends and family of the above mentioned please. Please make yourself at home. Look through the old threads or start new topics if you feel the desire. We are really glad that you have found us and I hope that you find the the answers and support that you are looking for

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    Elo (07-01-2011)

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    Hi Elo, welcome to a great group of folks. You are perfect for our family! Can't wait to get to know you better. Blessings

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    Elo (07-01-2011)

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    This is a wonderful place to get information and support while you are waiting for a diagnosis, and beyond (as Buzz Lightyear would say). Welcome!

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    Elo (07-01-2011)

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    Thanks so much for your warm welcomes!
    I've been surfing around on the forums and am feeling sooo at home atm! I was so surprised when I found out how little people know about autoimmune diseases, and how widespread it actually is. Looking through support group lists, they had page after page on specific types of cancer and small things that aren't very common, and yet the only autoimmune they had was Grave's disease and Lupus. Not to mention I've had multiple people have no idea what an autoimmune disease even is, and some people who pretend as if they do, but really have no idea.

    Needless to say it's very nice being somewhere where I don't have people giving me a blank look when I tell them I have an autoimmune disease, or asking me "What does that mean?" "What's that?"

    and I don't have to feel weird about not being normal or traditionally healthy.

    Thanks again!

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    Gizmo (07-01-2011)

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    hi and welcome,
    there is 63 auto immune disorders.
    we have a thread listing them, and there basic description.
    hope you are able to see a specialist.

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    Quote Originally Posted by Elo View Post
    I've had multiple people have no idea what an autoimmune disease even is, and some people who pretend as if they do, but really have no idea.
    I know how you feel Elo, I had a lady at the pool say to me Lupus was just like having hives. And then started to walk off. I then told her what it meant to have Lupus, and how I am affected. She dropped her jaw and went "OH".
    Diagnosed with Lupus - 22 June, 2010

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Elo,

    Don't worry, you don't have to have Lupus to be a member here. In fact, much of our efforts here involve helping people who have yet to recieve a diagnosis figure out what they have, be it Lupus, or some other autoimmune disorder. As you've discovered, public awareness of autoimmune disorders is sadly lacking, yet these disorders are widespread.

    Please make yourself at home, and welcome to our group.

    Rob

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    Welcome to the WHL family. As you've discovered, people are pretty ignorant when it comes to AI diseases. I work with people with advanced degrees yet they thought Lupus was related to AIDS.

    Dumb, dumb, dumb....

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