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  1. #11
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    Hello running girl,

    With what alot of us go through we would'nt wish it on our worst enermy but your symptoms sound so connected besides you being diagnosed with the raynauds also but reading the threads like i said will help you such alot if a diagnosis is further made.

    Hugs Terry xxx

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    HI Running Girl;
    Just wanted to pop in to add my welcome to those you've already received. I see that you have been given some good information about Lupus rashes..there are really quite a few different rashes and, no, they do not present the same way on everyone. They even change within us; The rash I have today is completely different from the rash I had when I was diagnosed :-(
    Please continue to read through the threads and the stickys..there is so much information here and this group is filled with people who care, who want to help, and who understand. I am glad that you are here

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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  4. #13
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    Hello Running girl,

    How are you feeling since you joined??...please keep we all updated.

    Terry xxx

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    Thanks again for the warm welcome.

    Terry, Thanks for asking.

    This has been an interesting experience. Since my pseudo diagnosis I've been struggling to accept it. Though my doctor says my disease is only just emerging I don't have a number of symptoms that many of you do. Having said that I have become more and more sensitive to the things that may indeed be lupus.

    Sun sensitivity. I'm very fair skinned and generally have always avoided the sun. I was just at a cottage for a week and was good at keeping covered up, staying in the shade and wearing my 70 sfp, until the last day when I went for a canoe ride. Now my bumpy itchy rash has blossomed all over me. I also question if the heat irritates my skin. Though I still don't get the rashes that seem to be more typical with lupus.

    Lungs - When I breath in deep I get a pain in my back. The doctor asked if I had pain in my chest but didn't ask about my back. Can lung pain come in the back?

    Raynaud's - loves swimming.

    Tired - Well, I've always been a person who needs a lot of sleep and that hasn't changed. I often have a nap when I get home from work and still get 8-9 hours at night.
    Joint pain - Recently my fingers have been achy after holding something (like the steering wheel) for a while, and that could just be fatigue. I don't have any of the aches that some many of you do. I'm sorry you have so much pain.

    Brain Fog - This is what rings most true for me. Honestly I thought I was having symptoms of early onset Alzheimer's. Over that past 8-10 months my ability to "keep-up" has diminished substantially. I have a busy career and I'm worried my confusion is starting to show. Does this go away?

    So - I'm started to see Lupus as a possible fit, but I also worry about the power of suggestion. I guess I'll have to see what my labs say and that may give me more information.

    Thanks for hearing me out. It's very nice to have such an informed group of people of bounce my thoughts off of.

    Brenda

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    You are welcome here any time, Brenda! With or without a diagnoses you are always welcome here. Please let us know what the doctor and labs say

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    i have pain from deep breathing.
    foe me it is the inflamed muscles.
    my rhuemy explained it: your muscles are sore when they are pushed on.
    they push back, moving the lungs backwards, causing the pain.

    this is what it is in my case.

    i also get sore fingers from driving.......
    again it is the swollen finger muscles and joints.

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  9. #17
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    Quote Originally Posted by steve.bryce View Post
    i have pain from deep breathing.
    foe me it is the inflamed muscles.
    my rhuemy explained it: your muscles are sore when they are pushed on.
    they push back, moving the lungs backwards, causing the pain.

    this is what it is in my case.

    i also get sore fingers from driving.......
    again it is the swollen finger muscles and joints.

    Omgosh Steve I used to get that pain in my back when I breathed in when I was in a flair. Nooneever explained it to me. This helps me understand much better.

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  11. #18
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    Thanks Steve,
    That is interesting and would explain my situation.

    Have a good day.
    Brenda

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  13. #19
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    Quote Originally Posted by running girl View Post
    Thank you all. You are right, this is a great group.
    Hello Running girl,

    How have you been feeling lately since you joined us...please keep we updated.

    Terry xxx

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