Hey guys, the doc has no intention of taking me off the plaquenil... I balance between 400mg and 600mg dose. I change my dose myself, based on how I feel. I am not sure how others do it, but that is what was recommended by my original rheumy and I have come up against no resistance to it from any doctor... so it must be a common thing to be in charge of your own dose on plaquenil?
I use 600mg when it looks like I am in a flare and 400mg for maintenance. I tried to drop to 200mg and found that I would go into a flare within a week or two, I may as well have gone right off it. The plaquenil has been good to me, but the docs think I might just need a bit extra something... I expect it will be small dose of steroid. You've made me feel a bit better about the steroids though... thanks guys : ) I guess I will have to wait until July to find out what they recommend.