First: "Seizures" are one of the 11 criteria used to diagnose Lupus. So, this is something that your doctors should be aware of and should NEVER dismiss! Perhaps you can show them the following articles about Lupus and Seizures in order to educate them (since they seem reluctant to educate themselves).
"Yes. Systemic Lupus Erythematosus (Lupus) can cause seizures. Researchers report that seizures occur from lupus at the onset of their disease in less than 5% of patients. Seizures occur from lupus during their lifetime in approximately 10% of patients." MedicineNet.Com
The exact frequency of stroke in SLE is not known, but the risk of recurrence may be 50% or higher, and the occurrence of stroke increases the risk of seizures.3 The mechanism for stroke in SLE is also not known, but it is often believed to be related to cardiac involvement (as a source of embolic phenomena) and a prothrombotic state.3 The presence of anticardiolipin antibody and lupus anticoagulant, both procoagulant substances in vivo, may contribute to this risk. Strokes may occur in any distribution and may be related to immune-mediated microvascular disease. Clinical features are variable and can present with focal deficits or a more global syndrome of dysfunction, such as encephalopathy.2
Cognitive changes with SLE are quite variable. Presentation may be acute or subacute, with clinical manifestations of agitation, altered awareness, dementia, or overt psychosis. Although dementia is not considered one of the most common presentations, formal neuropsychological testing has suggested that 66% of SLE patients experience cognitive impairment.6
The true incidence of seizures in SLE is difficult to determine, owing to the multiple potential etiologies in SLE. In one series of 91 patients, 22 (24%) had seizures. Of these patients, two probably had idiopathic epilepsy, one had probable post-traumatic seizures, nine had active systemic infections, and four had significant azotemia. All of these seizures were generalized, with focal onset in five.3 In another series of 161 SLE patients, 16 (10%) had seizures during the entire course of illness. Seven (4.4%) of these patients had onset of their seizures before developing the required diagnostic criteria for SLE.7
Both partial and generalized seizures occur in SLE. They can occur as the only manifestation of CNS involvement or as a complication of the cerebrovascular manifestations. Seizures that occur secondary to strokes usually are focal in onset but may secondarily generalize. Seizures also may result from encephalopathy with a metabolic cause, particularly uremia from liver failure." Epilepsy.Com Professionals
"Although nervous system involvement in systemic lupus erythematosus (SLE) is unclear and controversial, people with lupus do often experience signs associated with the body's nervous system, such as:
- difficulty with concentration
- occasional seizures or strokes"
LUPUS FOUNDATION OF AMERICA
I hope that this has been helpful..Please let us know how you are and if your doctors are willing to accept the truth as these are well known facts!
Peace and Blessings
Look For The Good and Praise It!