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Thread: hello

  1. #11
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    hi sandy, welcome.

  2. #12
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    Quote Originally Posted by missfearless View Post
    Hi ritzbit! I'm around your age (quite close actually). Just wondering, when were you diagnosed with lupus?
    I think you missed me on your post lol I was diagnosed 2 years ago, not to long after I turned 16. But Im pretty sure I've had it for much longer.
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

  3. #13
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    I got around the same age too. Are your school friends aware of your lupus? I used to be very ashamed of it and no one knew for a whole year but now they know all about it.

    Quote Originally Posted by ritzbit View Post
    I think you missed me on your post lol I was diagnosed 2 years ago, not to long after I turned 16. But Im pretty sure I've had it for much longer.

    Mark 10:27-
    But Jesus looked at them and said, “With men it is impossible, but not with God; for with God all things are possible.

  4. #14
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    Only my close friends knew when I first found out and then I HAD to start explaining it because I had to start dressing differently, and then I WANTED to share it with everyone to make everyone aware of it the best I could. I know what you mean though. When I first found out and was telling people I would say "lupus" in almost a whisper and couldnt look people in the eye. It felt like a curse word or something and felt foreign every time I said it. Being comfortable with it I think just takes time.
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

  5. The Following User Says Thank You to ritzbit For This Useful Post:

    missfearless (06-26-2011)

  6. #15
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    Yeah I feel the same way too. Now I just want to tell everyone about it! I want to tell people "hey I've a serious disease like lupus and I am doing the same things you're doing!"

    Quote Originally Posted by ritzbit View Post
    Only my close friends knew when I first found out and then I HAD to start explaining it because I had to start dressing differently, and then I WANTED to share it with everyone to make everyone aware of it the best I could. I know what you mean though. When I first found out and was telling people I would say "lupus" in almost a whisper and couldnt look people in the eye. It felt like a curse word or something and felt foreign every time I said it. Being comfortable with it I think just takes time.

    Mark 10:27-
    But Jesus looked at them and said, “With men it is impossible, but not with God; for with God all things are possible.

  7. #16
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    Same here. Or I want to be like I have a serious disease and thats why I cant do everything just like you.
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

  8. #17
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    Hi Sandra,

    Welcome to WHL and it's lovely to have you with us but i always think it's terrible to have such young member's going through it.

    Hugs Terry xxx

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