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Thread: Children with illnesses

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    Exclamation Children with illnesses

    Hi everyone,

    This is one of those threads that don't really have a lot to do with the disease but it can/does have a lot to do with our lives and stress levels. I have noticed that many of our members have children that are ill and I wanted to get an idea of how many. If nothing else it will allow us to get to know our family a bit better but it could also allow us to give/get support in another way.

    Here goes: Which of you are dealing with ill children as well as your own disease. If you don't mind sharing what is wrong please do but if it makes you uncomfortable then just let us know if it is an AI related disease or something else. I have come to believe this may be a bigger issue then I had thought before. I have my own beliefs as to why but I will save that for later.

    I look forward to hearing from/learning about each of you a bit more
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  2. The Following 2 Users Say Thank You to tgal For This Useful Post:

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    Hi Marie,

    Such a great thread for members who's children have illnesses like you said but this will be a thread i won't be able to get involved with to much never having children myself as you know.

    So i hope member's get alot of love and support from this great thread Mari's done.

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    I have a 19 year old daughter with undifferentiated connective tissue disorder, Ehlers Danlos syndrome, dysautonomia, adrenal insufficiency, eosinophilic esophagitis, a history of hemiplegic migraines and asthma. She is on methotrexate, prednisone, fludricortisone and plaquinil for the autoimmune stuff. I think she will eventually be diagnosed with SLE. She is disabled to the point that she cannot attend college or work, and I have not been able to work for 5 years because she has needed a fulltime mom. We are in a financial place, in part due to medical expenses where I must get a job - but we don't want to leave our daughter home alone all day.

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    I have a six year old son with autism and my twelve year old has bipolar disorder and was recently diagnosed with aspergers.

    I hope I am not being a killjoy to the op but I have often wondered if there is a link between a mother with an AI disorder having children on the spectrum.

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    Quote Originally Posted by bamber View Post
    I have a six year old son with autism and my twelve year old has bipolar disorder and was recently diagnosed with aspergers.

    I hope I am not being a killjoy to the op but I have often wondered if there is a link between a mother with an AI disorder having children on the spectrum.
    Not a killjoy that is why I opened this one. I may be wrong because I have quite a bit of cognitive damage but I think there is someone else on this form that has a child with aspergers. I guess we will see
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    hi my name is kim l i have 1 24 year old with borderline personality disorder and partial blindness that is my son josh i have my daughter sarah who is 23 with post traumatic stress and ocd and depression and endometriosis, asthma, and bladder problems and fast pulse rate, i have a 15 year oldnamed mikaela with aspergers and intellectual impairment and depression all 3 of my children where born premature josh at 36 weeks sarah at 35 and mikaela at 31 sarah shows all signs of lupus but but bloodwork negative mikaela has been tested and her blood work says she is on borderline she could get it or not. having a child with aspergers is challenging and often stressful anyone needing to talk about there child with aspergers i am willing to be a support hugs kim l

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    Hi I have two grown children with severe mental illness. One has depression with psychotic features and the other with bi-polar with psychotic features and 4 learning disabilities.

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    Mari,
    This is a great thread. Even though the docs try to say that this stuff isn't hereditary, we seem to be proof that it is. My mother and aunt had AI symptoms.
    Here is my contribution of info on my kids:
    Heather- 34- Healthy so far
    Hillary - 32 - Lactose and Gluten intolerance, Polycystic Fibroid Syndrome - her son David is healthy.
    Tom - 29 - Healthy as a horse former Marine
    Kayla - 26 - Severe Asthma & Allergies, has one working kidney, IBS, possible gluten intolerance. Her son Kyle has Asthma & Allergies, possible gluten intolerance.
    Meghan - 24 - Endometriosis, mild asthma Her son Ryan is healthy.

    I really think that it is good for us to compare notes like this. It is important that our kids know about this and what to watch out for.
    Hugs,
    Marla
    PS - I forgot to mention that I had an uncle who had Parkinson's, and his daughter had MS - interesting, huh?
    Last edited by magistramarla; 06-25-2011 at 09:58 PM.

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    I have three children. My oldest son is healthy. Middle son has a submucous cleft palete, sensorineural hearing loss and Raynaud;s Disease. Daughter has eczema.

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    I better post my response now before I forget or Mari's going to kill me! lol

    Mia - POTS (Postural Orthostatic Tachycardia Syndrome) a type of dysautonomia which a lot of people outgrow, but it doesn't seem that she is going to
    Zachary - Spinabifida Occulta, Hemihypertrophy
    Patrick - severe allergies, lactose intollerent, possibly gluten intollerent, stomach issues aside from those, mild dysautonomia, currently negative ANA - but exhibits a lot of the same issues i had as a child (severe growing pains, very sun/heat sensitive)
    Lauren

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