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Thread: Hello :)

  1. #11
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    Yes Steve is so on. I read all that I can from this forum. I'm learning more from this Family than anywhere I have searched in 5 yrs. Thanks everyone!

  2. #12
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    Hi Wendy,

    A nice warm welcome to our lovely family of WHL and there's so many threads to venture through to learn what can be connected with Arthritis concerning Lupus.
    I'm not being nasty but your Rheumo specialist is Totally of his head you can't diagnose someone with one thing then say another and send you off to search the internet plus to worry about 5-10yrs time. Lupus can be controlled good with the right medication to suite the person and also the Disease they have, he was way out of order.

    The reason's he's told you this because your DNA, DS and Antigen are a prognosis for (Systemic lupus erythematosus) which i have myself and a good many member's on the site.

    I'll add some info for you to read but i would re-phone up and request to see him earlier as he sounds a rheumo who can give you your results but is just fobbing you off.

    ((Hugs Terri)) xxx
    Last edited by Peridot20_Gem; 06-15-2011 at 08:20 AM.

  3. #13
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    Symptoms of Systemic Lupus Erythematosus (SLE)

    Symptoms:

    SLE symptoms may develop slowly over months or years, or they may appear suddenly. Symptoms tend to be worse during winter months, perhaps because prolonged exposure to sunlight in the summer causes a gradual build-up of factors that trigger symptoms months later.

    Arthritic Pain
    The most common symptom is joint pain, which occurs in about 90% of patients with SLE. Characteristics of this symptom vary widely:

    •It is often accompanied by swelling and redness.
    •It can last from hours to months.
    •It may be mild or severe.
    •It can occur in one joint, move from one to another, or flare erratically.
    •Pain often occurs in the morning and improves during the day, only to return later when the patient tires.
    •The joints most affected are fingers, wrists, elbows, knees, and ankles. (Joints in the spine and neck are not affected.)
    Children may experience these symptoms as growing pains, and, in all patients, they may be the only symptoms for many years.

    Fever
    Fever occurs in 90% of patients with SLE and is usually caused by the inflammatory process of the disease, not by infection. It is low-grade except during an acute lupus crisis.

    Skin Rashes
    Three-quarters of patients with SLE have skin inflammation and skin lesions (ulcers, rashes, or other injured areas). About half of these lesions are photosensitive; that is, they are aggravated by ultraviolet (UV) radiation from sunlight, even from light coming through a window. (UV radiation may even trigger systemic flares in patients with SLE.)

  4. #14
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    Wow, I'm truly thankful that I found this site You guys have all given me more insight on what is going on and what steps I need to take. I truly appreciate it! I've spent the last couple months terrified because I had no idea what to expect, I was thinking all doom and gloom, But you guys have given me hope that things aren't as bad as he made them out to me. I'm hoping to make it to Georgia in the next month, we were hoping that it would be sooner, but things didn't work out, I'm going to start looking for a dr and see what I can do. Thank you all so much!

  5. #15
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    Hi Wendy,

    Your welcome, that's what we're here for to love and support one another.

    I saw your post about pleurisy i've had that several times and it's scared my left Lung and being stressed or having depression which i have, it thrieves off it and makes your symptoms feel alot worse than they are.

    When your having blood tests Lupus loves playing with your bloods and fluctuates them and if you do have something it can show a negative reading instead, alot of member's are having this trouble and re-testing of bloods just carries on, it took 6mths for my anaemia to show it's true colours and refering your joint pain we seem to match on a fare bit.

    Hugs Terri xxx

  6. #16
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    I'm hoping that I don't have to go through the pleurisy again, that was one of the most painful things I have ever had to deal with. I also have stress and depression, I've been anemic for about 2 yrs now, Just can't seem to get it to go away now! I also have mouth sores..which once i get them, they take forever to go away. Still trying to decide if the ones I get are from lupus or just because! lol

    I'm defiantly going to continue coming here It's good to know that there are people that can relate and understand things that you are going through make dealing with it alot easier!

  7. #17
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    Wendy,

    Pleurisy really does hurt and they checked my lungs for clots but i was lucky with that. I've been a manic depressive from 18yrs old and the Lupus does make me suffer with it and then the water works start going.

    For your anaemia are you on B12 Jabs for life, i had anaemia a few years back now and it dropped rock bottom and they got me right and i've now got it again taking a folic acid tablet daily and B12 Jab every 3 mths for life.
    You really need to becareful with the anaemia as that alone can make you feel ill and tied out.

    The mouth sores are a big issue on the site besides mouth Ulcers, some have it with their meds and they can just happen from what disease they have conncected to the Lupus.

    Wendy keep with us and keep we updated and if you feel low just come on and vent away mate as there's always someone on to answer being a worldwide site.

    Terri xxx

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