Page 7 of 20 FirstFirst ... 5678917 ... LastLast
Results 61 to 70 of 192

Thread: Siezures

  1. #61
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,742 Times in 1,211 Posts

    Default

    Dr's sometimes need to be slapped! Can you ask for a 2nd opinion? If the meds are helping why in the world would they take him off of them? That is crazy talk!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  2. The Following User Says Thank You to tgal For This Useful Post:

    MaryS42 (06-23-2011)

  3. #62
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Hi Mary,

    Thank you so much for your kind words but i know what your going through when you need support, been there in the past and just chatting to someone helps such a great deal.

    I'm not a doctor as you know but been through so much in the past plus with different neuro's besides being on wards with people having different seizures to know that what Alan's going through is definitely not stress related, his body and mind will get stressed with what he's having to cope with not the other way round.
    Mary, Alan needs fetching off the phenytoin because they're used for seizures i suffer with not what Alan's having and what as carmed him down is'nt the phenytion because it does take quite a few days for them to set into the system, it's the valium (Diazipam) which as lowered him.
    It's a drug used by ambulance services and doctor's on quick response to stop seizures straight away and you can get them in suppositorie form for the back passage which they work just as quick as a jab.

    I've been looking up on people who don't have seizures but the reaction's are like seizure's and they're called Cluster seizures so i would definitely say to them, may he be suffering with Cluster seizures, those are for people who don't have epilepsey but have seizures in the state of one and see what they have to say about that.
    If you keep advancing these question's forward, with some doctor's they do take notice and it's also showing them your trying to understand what's happening and how your seriously worried about this carrying on and not getting controlled.

    Alan shaking and looking like someone with parkinsons, they're strong and hitting his nerve system hard, he's gone through alot and they can't afford to be playing guessing games, they should be doing alot more tests, why are'nt they testing his nerves with electric rodes for a start off to see if there's damage concerning his body.

    Mary i'm sorry but going through years of it and coma's and hearing this, which as extended for days and they're no where near a diagnosis it makes my blood bile.

    You've just mentioned is height and looking like a frightened boy besides hospital food try and get him to eat extra because if they carry on like they have been doing, they'll ware him out and he needs to hold body weight to take the strength of the seizures.

    If he does know your telling me and other member's tell him from me to hold on tight and fight it well as i really know what he's going through.

    I'll wait to hear from you mary and thanks again for updating we.

    My thoughts are with you both and all my dearest love to you mary xxxxxxxxxxx

  4. The Following User Says Thank You to Peridot20_Gem For This Useful Post:

    MaryS42 (06-23-2011)

  5. #63
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,742 Times in 1,211 Posts

    Default

    I am not sure what "fetching off" means but if it means "taken off" then I am not sure that I agree (thus why we state that we are not doctors). I am currently on 2 seizures meds even though they were not able to see mine on EEG. I am on them because they work. Alan needs a doctor that is willing to step off the main path and do what works not what the books say work.

    Keep us posted Mary. We are keeping our fingers crossed.

    (this happens when we have so many countries speaking!)
    Last edited by tgal; 06-22-2011 at 04:18 PM.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  6. The Following User Says Thank You to tgal For This Useful Post:

    MaryS42 (06-23-2011)

  7. #64
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Mari,

    "Fetched off" in our black country accent means "taken off" as so many members know.

    You may be on meds that suite you even though nothing was found on your EEG as you've stated and they put me on medication years back for mine which was'nt the right ones and i'm not half brain damaged due to my own fault, it was due to neuro's and psychiatrists playing God with medication that put me this way and furthur running of tests by the Neuro surgeon he found the proper diagnosis for me and meds.

    Wrong medication can do more harm to the brain than anything else and Alan can do without that.

    Your correct Alan needs a second opinion and more tests running before they jump in to quick with meds as he's been through Alot.
    Last edited by Peridot20_Gem; 06-23-2011 at 04:51 AM.

  8. The Following User Says Thank You to Peridot20_Gem For This Useful Post:

    MaryS42 (06-23-2011)

  9. #65
    Join Date
    May 2011
    Location
    Cumbernauld Scotland
    Posts
    89
    Thanks
    180
    Thanked 59 Times in 47 Posts

    Default

    Hi All well todays news is as far as hospital doctors are concerned the Lupus is "under control" his kidney function is "best its been sitting at 39%" function its definately not epilepsy they are dropping the steroids from 40mg to 20mg he is no longer to take Mycophenolate(cellcept) they are now going to try cyclophosamide(chemo) they are now saying we shouldn't use the word "seizures" as they don't think it is seizures they are going to half the phenytoin dose then stop it all together !!!!! Then when they've done all this in my opinion "GOD HELP HIM!!!!!!) They are playing with my mans life and I don't like it one bloody bit this is Thursday they said he'll be home out the hospital on Monday!!!!!!!! Will keep you all posted on developments!!!! Love to all M.x.

  10. The Following User Says Thank You to MaryS42 For This Useful Post:

    Peridot20_Gem (06-23-2011)

  11. #66
    Join Date
    May 2011
    Location
    Pennsylvania, USA
    Posts
    882
    Thanks
    409
    Thanked 272 Times in 196 Posts

    Default

    Hi Mary, I have no words of advice, just a great big prayer lifted up for you and your husband. Please keep us posted.

  12. The Following User Says Thank You to lovedbyHim For This Useful Post:

    Peridot20_Gem (06-23-2011)

  13. #67
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Hello Mary,

    Thanks for such a quick reply today. Well if they say is Lupus is under cntrol that's one good piece of news and also about his kidney function.
    Fare enough he does'nt have fits refering (Seizures) as they don't like it being used god knows why because that's what they're called.

    I'll be looking up why they're trying chemo for and also the name but in general i'm pleased if they think he does'nt need Phenytoin and i'll refer to that drug later.

    Mary PrintCyclophosphamide (Cytoxan) is a suppressent for the immune system, i'll add info below and a link so you know what it's being used for concerning your hubby.

    I'll get back to you Mary on this because it's taking such a while to sort Alan and i can tell it's eating at you with what you've saw and how the treatments been dealt with.

    All my love Terry xxxx
    Last edited by Peridot20_Gem; 06-23-2011 at 05:25 AM.

  14. #68
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Cyclophosphamide (Cytoxan)

    Cyclophosphamide (Cytoxan) belongs to a class of drugs known as alkylating agents, which have been used to treat some types of cancer. It is also considered an immunosuppressant—a medicine that can decrease the immune response.

    Fast Facts
    Cyclophosphamide is reserved for severe, refractory rheumatoid arthritis or severe complications of lupus, myositis or vasculitis.
    Cyclophosphamide can be associated with serious side effects and requires careful monitoring by your physician.
    Uses
    Conditions treated with cyclophosphamide include lupus; systemic sclerosis (scleroderma); some forms of vasculitis; myopathies such as polymyositis and dermatomyositis; and, sometimes, rheumatoid arthritis.

    Cyclophosphamide is used for severe complications of rheumatoid arthritis, such as blood vessel inflammation (known as vasculitis). In lupus, it is given for serious kidney problems or other organ-threatening complications. Although cyclophosphamide has allowed people with some of the diseases listed to live longer, this medication can cause serious side effects. Careful monitoring is needed for this medicine.

    How it works
    Cyclophosphamide blocks the production of the deoxyribonucleic acid (DNA) in cells. This prevents cells from dividing, leading to cell death. Some of the cells affected by this medication are immune cells. These play a key role in autoimmune diseases such as rheumatoid arthritis, lupus, scleroderma or vasculitis.

    Dosing
    The dosing of cyclophosphamide varies from person to person and depends on the disease being treated. For the form taken by mouth, a usual dose is 1.5 to 2.5 milligrams (mg) per kilogram (kg) of body weight per day. This medication also is given in an intravenous (IV) form in the doctor's office or hospital. For example, cyclophosphamide is sometimes given as a monthly infusion for the treatment of lupus kidney disease.

    Time to effect
    It may take several weeks for symptoms to improve, and the full effect may take several months or longer.

    Side effects
    Common side effects, which may be worse with the pills, include nausea and vomiting. These symptoms usually can be controlled with anti-nausea medications. Hair loss can occur, but hair usually will grow back when the medication is stopped. Other common side effects include skin rashes. Cyclophosphamide increases the risk of developing some kinds of infections, especially herpes zoster, often referred to as “shingles.” Unusual infections can occur with cyclophosphamide use.

    Other important side effects include:
    Blood cells: Cyclophosphamide can have significant effects on the blood cells, typically causing a reduced number of white blood cells, a key component of the body's immune system. This can occur 8-12 days after starting treatment. Your doctor will check your blood counts around this time and make dose adjustments as needed.

    Fertility problems: Cyclophosphamide can cause infertility in both men and women. This often is seen in older patients or those taking higher doses for long periods of time. Discuss this issue with your doctor before taking cyclophosphamide. Although women taking cyclophosphamide can stop having periods, they can still become pregnant so an effective form of birth control to prevent pregnancy should be used while taking this medication. Taking cyclophosphamide during pregnancy is very dangerous to an unborn child.

    Bladder problems: Cyclophosphamide is broken down in the body into several other products. One byproduct known as acrolein can cause an irritation of the bladder, or “cystitis,” which may result in blood in the urine or scarring of the bladder. Patients taking oral cyclophosphamide should drink plenty of fluids each day to help prevent problems. Patients receiving intravenous therapy are sometimes given a medication called mesna (Mesnex) to help prevent bladder problems.

    Cancers: Cyclophosphamide increases the risk of developing some kinds of cancers, which can occur years after taking this medication. Long-term use and higher doses of cyclophosphamide may lead to a higher risk. Bladder cancer is the most common cancer related to cyclophosphamide, so your doctor will recommend periodic urine tests to screen for this.

    Points to remember
    Because cyclophosphamide can cause serious birth defects, women who are pregnant or considering having a child should talk with their doctor before taking this drug. To avoid pregnancy, use an effective form of birth control throughout the course of this treatment. Also talk with your doctor about breast-feeding while on this medication.

    Some of the side effects of cyclophosphamide may be serious. You should contact your doctor if you notice the following: blood in your urine, fevers and chills, easy bruising or bleeding, shortness of breath or swelling of the feet and ankles.

    Because cyclophosphamide use increases the risk of infection, some doctors suggest that patients take a concurrent antibiotic called trimethoprim sulfa (Bactrim), unless there is an allergy to sulfa medications. Be sure to talk with your doctor before receiving any vaccines and undergoing any surgeries while taking this medication. Caution also needs to be taken if any household members, particularly children, receive live vaccines while you take this medication.

    Drug interactions
    Let your physician know all medications you are taking, including over-the-counter medicines and herbal supplements. Important drug interactions can occur with the following medications: the gout medication allopurinol (Aloprim, Zyloprim); phenobarbital (Solfoton); warfarin (Coumadin); thiazide diuretics, such as hydrochlorothiazide; and some psychiatric medications. Other medications also can interfere with cyclophosphamide.

    Information to Discuss with Your Primary Care Physician and other Specialists
    Be sure to notify your other physicians that you are taking this drug or have been given this in the past. This is important, as there are some long-term risks with this medicine that might need to be considered even years after taking the medication. Live vaccines should be avoided while on this medication and you should discuss updating your vaccinations prior to starting this medication. Because this medication can lower your ability to fight infection, it is important that you discuss this with any treating physician, as this may lead to a different evaluation or treatment.

    For more information
    The American College of Rheumatology has compiled this list to give you a starting point for your own additional research. The ACR does not endorse or maintain these Web sites, and is not responsible for any information or claims provided on them. It is always best to talk with your rheumatologist for more information and before making any decisions about your care.

    www.rheumatology.org › ... › MEDICATIONS (Mary type in the search section on the right Cyclophosphamide and on the next page click on the top link)
    Last edited by Peridot20_Gem; 06-23-2011 at 05:22 AM.

  15. The Following User Says Thank You to Peridot20_Gem For This Useful Post:

    MaryS42 (06-23-2011)

  16. #69
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,742 Times in 1,211 Posts

    Default

    Quote Originally Posted by Peridot20_Gem View Post
    Mari,

    "Fetched off" in our black country accent means "taken off" as so many members know.

    You may be on meds that suite you even though nothing was found on your EEG as you've stated and they put me on medication years back for mine which was'nt the right ones and i'm not half brain damaged due to my own fault, it was due to neuro's and psychiatrists playing God with medication that put me this way and furthur running of tests by the Neuro surgeon he found the proper diagnosis for me and meds.

    Wrong medication can do more harm to the brain than anything else and Alan can do without that.

    Your correct Alan needs a second opinion and more tests running before they jump in to quick with meds as he's been through Alot.
    I am sure so many other members know that is why I said something about this being an issue with so many countries and how we speak. I am sorry if I offended you by trying to understand something that we don't say in the states.

    I agree too that wrong meds cause problems. My only point was that just because the EEG didn't show anything doesn't mean they should take him off all meds. He needs a second opinion and he needs to be treated properly.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  17. The Following 2 Users Say Thank You to tgal For This Useful Post:

    MaryS42 (06-23-2011), steve.b (06-23-2011)

  18. #70
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Mari,

    You have'nt offended me, i was just stating it had the same meaning.

    He does need a second opinion like you've stated but the trouble is all country's they work different and it's according to the situation which your in, that your allowed second opinions. Refering the meds until they can actually find what's wrong with Alan, i do know that Valium does'nt harm the nerves or cells of the brain it's a surpressive which slows the cells down and nerve system and he would'nt be getting no affects otherwise till they can diagnose him properly.

    I am actually concerned for mary she's so worried and god knows how Alan feels with these hitting him out the blue.

  19. The Following User Says Thank You to Peridot20_Gem For This Useful Post:

    MaryS42 (06-23-2011)

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •