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Thread: Siezures

  1. #161
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    Problem solved Alans rheumi has had him admitted into hospital until they get to the bottom of these seizures and a proper diagnosis and treatment put in place. Luv M.x

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    good.
    hopefully her can get to the bottom of the problem !!!!!!!!!!!!!!!!

    it is hard for you, but probably the best for alan.

    remember 3 square meals a day..... dont want your daughter telling on you lol

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  4. #163
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    Hi Mary,

    I was just thinking about you and wanted to let you know that you and Allen are in my thoughts
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  5. #164
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    Hi All Alan having between 3 and 5 seizures a day so has been told to remain in bed as everytime he stands up he has a seizure neurologists coming to see him on Monday will keep you all posted . Love to all M.x.

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    Quote Originally Posted by MaryS42 View Post
    Hi All Alan having between 3 and 5 seizures a day so has been told to remain in bed as everytime he stands up he has a seizure neurologists coming to see him on Monday will keep you all posted . Love to all M.x.
    Thanks for the update! I am glad he has a neuro coming! Maybe he will get answers soon
    Mari

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  8. #166
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    Hi All well Alan got out of hospital after being in for a week with the seizures neurologist said without an MRI he can't say for certain but now Rheumi,Neurologist and kidney specialist all think the seizures are Lupus attacking the brain so he starts cyclophosphamide(chemo) next week which they hope will in turn help control the seizures.He had to go into hospital today to have a colonoscopy to investigate the inflamitory colitis however he had 2 seizures while there so they said it was too dangerous to go ahead with the colonoscopy so its a bit of a nightmare just now .Hope everyone is well take care Love M.x.

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    I am so sorry Mary! The good news is that he is going to get some help so the seizures stop. I have seizures and I can't imagine having them that often. Please keep us posted and don't forget to take care of yourself!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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  12. #168
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    Hey Guys I was just wondering do any of you experience (cramps/cramping pains) Alans seem to be getting worse he mostly gets them in his hands they can be so severe that his hands locks out into a claw we were just wondering if anyone else gets this and if so do you think its lupus related its so hard to tell if its lupus or maybe the high dose steroids appreciate your thoughts on this.
    Love M.x.

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    Quote Originally Posted by MaryS42 View Post
    Hey Guys I was just wondering do any of you experience (cramps/cramping pains) Alans seem to be getting worse he mostly gets them in his hands they can be so severe that his hands locks out into a claw we were just wondering if anyone else gets this and if so do you think its lupus related its so hard to tell if its lupus or maybe the high dose steroids appreciate your thoughts on this.
    Love M.x.
    That happens to me when my potassium gets too low. Sometimes I have to take magnesium along with potassium in order to keep my potassium from dropping. Hope that helps!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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  15. #170
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    Hi All well Alan had 1st dose of chemo today he had 2hrly bags of fluid then anti-sickness infusion then chemo then a further 2 bags of 2hrly fluid he had 3 seizures while at hospital it was a long day for both of us he's in bed now(he never goes to bed this early) normally however the sickness and diarrhoea have started. Hoping the side effects dont last too long and we start to see some progress with this treatment on the Lupus fingers crossed. Luv M.x.

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