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Thread: Siezures

  1. #131
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    Hi Mary,

    Thanks for the quick update and we all appreciate it.

    I wish Alan all the best of luck with the chemo on the 26th and besides that seizures holding off for him and i really hope your keeping fine besides mate.

    Do takecare and all my love Terry xxxxxxxxx

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  3. #132
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    Hi Terry

    Thanks for your good wishes we hope so too that all goes well this time round fingers crossed how are you doing i'm always on here moaning about one thing or another to do with Alan and you're always on giving me advice but how are you whats been happening lately I hope and pray you are well? Take care and keep in touch Luv M.x.

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  5. #133
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    Hi Mary,

    Sorry i'm late replying had a long weekend with my hubby and his car show but never again way to much for me.

    You ah always moaning on here to do with Alan i'd say expressing your feelings and concern for your hubby and that's what we're here for to help in anyway possible but i really do hope things work this time and there's no full back on issues to do with Alan.

    Love Terry xxxxxx

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  7. #134
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    Hi All

    Well at long last Alan seen his Rheumi today and im happy to report that he is now going to take over all Alans future care as far as the Lupus is concerned and he is also going to have his own team of kidney specialist take over Alans kidney failure also thank god because we have both lost all faith in the doctors at the other hospital.So we have to make our excuses as far as going to start the cyclophosamide next week to allow the rheumi to put things in place at his hospital.Lastly he is absolutely convinced that the seizures are down to the Lupus attacking the brain however he is going to have further tests done to confirm his suspicions.Hope you are all well keep in touch Love M.x.

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  9. #135
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    Hello Mary,

    Lovely to hear from you.

    "Brilliant news mate" concerning Alan's rheumo taking over his Lupus and also kidney specialist's who deal in this work at least he's in better hands now with specialist's who deal with these complaints.
    Mary let the rheumo sort the issues out and i said a good while ago Alan's seizures may have come from the Lupus as Lupus caused me my seizures in life...i'm so pleased though that the rheumo is doing furthur tests to clarify Alans seizures.

    I hope both your minds are both at ease more with people knowing what they're doing...as those other's had'nt got a clue when Alan was suffering, oh i am chuffed for you mate.

    Please let we know what they say or what tests are run when your able to.

    All my love to you both & fingers crossed from me. Love Terry xxx

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  11. #136
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    may i be bold enough to suggest......
    give the rhuemy full authority to prescribe whatever he see suitable.

    if his team is going to be in full control of alan.
    then give him the control.

    he would only prescribe medication he thinks suitable.
    if he has such a team of other specialists available,
    he would be considered a good specialist.

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  13. #137
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    Loving the profile photo Steve ha ha

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    steve.b (07-22-2011)

  15. #138
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    Hi Mary,

    I hope all is well your end and steve's right in what he says with the Rheumo and giving permission but if he suggests tablets for Alan concerning Seizures's...well that is a neuro's department and if it does come to that i'm sure the Rheumo will get someone involved who knows what they're doing, alot better than the other's as he'll see who's treated him previous.

    Love Terry xxx

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  17. #139
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    Hi Terry

    I dont think the rheumo will suggest tablets for seizures as he has already said he is going to organise for Alan to have further tests done to get an absolute conclusion that it is lupus attacking the brain by a neurologist so we're not worried about that he's a lovely man and we have every faith in him that he'll do his absolute best for Alan. I hope you are well and take care.

    Love M.x.

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  19. #140
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    Hi Mary,

    Nice to hear off you but even better to know for you both that Alan's with a good Rheumo, that's what really counts.

    I do hope they get to the bottom of what's going on and he seems to know what he's doing, fancy swapping rheumo's mate as mine is bloody useless, still waiting for an appointment...i'm going to ask my dermo who i see every 3mths if he'll treat me instead.

    Otherwise just been having the same ususal complaints, i do hope you and Alan are fine till the rheumo starts with the tests.

    All my love to you both Terry xxxxx

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