First of all, let me start off with an apology to those who were worried after I posted about my abdominal problems and didn't reply to them. That was crappy of me not to get back to you guys in a timely fashion and I sincerely apologize. I perhaps need to work on my social skills and know that there are people left in this world that are really kind and do care. I didn't mean to come off all dramatic like if I did. So, again I apologize to Gizmo, Terry, and the admins. I see from my last post you guys were monitoring to see if I logged on to make sure I wasn't laid up in a hospital somewhere. Also...a big thank you for caring. You don't really know me and it's truly nice to see people with good hearts whose intentions are good and pure. That means a lot, really. I just got so caught up in not feeling well, every time I would log on I'd have enough energy to reply to maybe one person and after that I was spent and really didn't feel like being on the computer anymore. Again, thank you. You guys rock my world and I hope to get to know you a lot better in the future. It's sooo nice to have people in your corner....something I have not had in awhile.
1st update will be about the abdominal pain. I did go to my PCP after the pain started. I'm not really sure what to think about the visit. He palpated my abdomen and kept asking me if it hurt when he palpated my stomach. I told him absolutely not. It hurts in my belly button and there is pain on my left side. He kept saying he thinks it is the prednisone irritating my stomach because the pain came on almost overnight. As intelligent as I think he is, I will have to disagree with his diagnosis...as I know my body and this is more than likely not the case although the pain came on all of the sudden and coincides with me taking the steroid. He also said, we have got to get you into a rheumy a lot sooner than this ridiculous Sept. 1 date..I am limited on what I can do for you until they run more blood tests. He sent me home with samples of some acid reducer which I knew wouldn't help. It didn't. I still don't know what the problem is but I know one thing that was aggravating whatever it is. Now we're all adults and this is gross but it's the way the body works...so I'm over being embarrased. So...I'm going to be pretty blunt in my following thoughts. Men probably won't care to read on. lol Of course, I am taking narcotic pain killers and one of the side effects of these evil devil pills is constipation. Once I took steps to alleviate this problem....the pain was significantly reduced. Right now the pain in my abdomen is pretty mild....but I still know it is there which leads me to believe constipation is NOT the issue; it only aggravated the issue with my abdomen. Now that I have started my period my abdomen feels very heavy and the cramps are more painful than usual. I am now getting stabbing pains in my rectum(sorry, I don't know how else to put it. Gizmo would say "punched in the butt" lol) But to me...it's more like being stabbed with a butcher knife in the butt. I'm not even trying to be funny. It hurts! This happens mostly when I sit down or try to have a bowel movement. Sooooo...I'm going to have to listen to my body on this one and say this is not a GI problem. I think this is a reproductive system problem. Not sure if it's a cyst, endometriosis, etc. It could be many things but in hindsight...I had these weird stabbing pains and feeling of heaviness with my last period. I think the ladies here would agree that this is not normal?
2nd update: My PCP did get another appointment with another rheumy scheduled. It's a lot sooner than the original Sept 1st date. This appointment is on July 27th. I still have to wait another month and a half almost...but it's better than the alternative which is three whole months away. I have kept my options open and have decided not to cancel the Sept 1st appointment because I am on a waiting list to get the next appointment should someone cancel. Id no one cancel I will go to the other appointment scheduled in July as planned.
3rd update: I went to my paim management doctor this past week and he basically wiped the slate clean and said we are going to start over at square one and he is going to try some different meds to see if he can curb the pain and keep me comfortable until the rheumy appointment. He seemed to be disappointed with the Sept 1 date also. He left the room after I told him how long the wait would be for the physician he referred me out to....and I heard him telling his MA to get that dr.'s office on the phone after lunch. He said a September date is unacceptable and he needs them to bump me up asap. I haven't heard back from them yet. He started me another muscle relaxer he said would work a bit different from others I have tried. He said it would help make the achey flu feeling I have a lot less noticable. It's zanaflex...and i'm convinced it is the devil in pill form as I feel drunk every time I take it. Not buzzed, but I just took 10 shots of tequila drunk. I have run into walls several times...seriously. And FORGET about driving or staying awake. I'm not sure of it works because I am never awake long enough after I take it to observe what it actually does. He also started me on diclofen potassium tablets for inflammation. He is keeping me on the Savella because we both feel it initially helped me in the beginning of all this junk starting. Then finally, he is keeping me on the hydrocodone for the days when the pain becomes unbearable. So far, since starting the new meds, I haven't felt as bad. But at the same time I believe the flare I was in started to subside the day before I saw the PM doc. I guess time will tell if they are really making a dent pain wise.
I'm just hoping for a cancellation so I can get into a rheumy asap.
Sooo, that's about it for an update. Patience is definitely something that is being practiced right now. It's wearing a bit thin as of late, though. I hope everyone is having a wonderful weekend...as flare free as possible...and hopefully a bit of an energy boost too.
I've learned the hard way, that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious ambiguity.
Hi Glibby, sorry to hear you are not doing well. I'm new here. As yet undiagnosed (apart from a lazy rheumy who told me I had fibro). I'm sure there are many other people here who would know about your abdomen pain but I'm just piping up as my mother has just been diagnosed with Colitis which is an inflammation of the large intestine and the pains you are describing are very similar to how she has been suffering. It's just a though as something to consider and rule out but whatever it is I do hope you are helped soon xx
Have you had an ultrasound of your abdomen and your pelvic area? If this is a reproductive problem that should be investigated. Your primary doctor should be able to refer you to an ultrasound.
Diagnosed with Lupus - 22 June, 2010
The drugs may be helping a little and drugging you up so you won't notice so much but like Linda said ask to be send for an ultrasound scan, i was having bad pains on my left side going down to my ovary, then i had spasms and took tablets to ease it and my GP sent me in the end for one and they scanned all my organs the lot and found that Tumour and damaged nerve on the left side interfering with my intestines and that's why i had so much trouble, like yourself waiting for an appointment.
Don't mess about mate and ask to be sent for one because here in the uk they can book you on an emergencey one and if it works the same where you live, you could be in sooner than you think and results can be emailed to your Doctor's the next day.
It's lovely to know your on the site because we was worried, enjoy your day the best you can mate.
((All my love Terry)) xxxxxxxxx
glibby, i am a male, so i have no first hand experience to help you.
but i do know that lupus can effect you badly in this area.
i also know that your description fits what my wife went through.
she, like many on here has been cut and does not suffer anymore.
so it might be lupus related, but i would see about the ultrasound first.
hope you find out soon.
I am so glad that you are ok (well, as OK as you can be now). Yes, we have been worried about you but there is no need to be sorry of feel like you have to come here. There are no rules that say you have to check in daily or weekly. I understand not wanting to get on the computer. I get on here but I am getting yelled at by all my cityville friends because I never go on there anymore. It just takes too much energy to do that. Just know that we are here when you need us and we do think of you. I hope you get your appointment sooner rather then later.
You will be in my thoughts
Success is not final, failure is not fatal: it is the courage to continue that counts.
No need to apologize Glibby. You have to deal with the same fact that we all do-you're human! Just take it easy, and take care of you.
We're all glad to get the update.
I know that you don't want more 'ologists, but you need to see your gynocologist and a gastroenterologist.
Don't mess around with these symptoms - get it all checked out.
Thank you so much for updating us. I am sorry to hear that you are still dealing with so much, but I agree that you should definitely ask for an ultrasound as soon as possible. These issues do sound like something that should be addressed quickly and treated immediately!
I wish you the very best!
Peace and Blessings
Look For The Good and Praise It!
How you feeling today and i really am hoping it's not severe for you.
Thinking of you dearly mate xxx