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Thread: how long did the specialist say you would need to be on plaquenil!!??!!

  1. #11
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    Quote Originally Posted by tgal View Post
    Terrie, I am not talking about people who have problems with it as you do. I am talking about the rest of us that don't really have much trouble with or or those that are able to get the stomach issues. Those that have trouble with it will not, of course, stay on it forever
    Marie,

    I know what's being stated and it helping people for such a good while and me mentioning side affects..is refering that i also want to be like yourself and other's keeping on the drug for years and so fare i'm just pleased that i've not hit the stage where i was before.

    As the drug is good in so many ways and i'm pleased it's working that way so fare and i'm hoping for the future it keeps that way.

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    sorry guys I forgot about this thread!
    I will PM you the book and where to get it from, it isnt cheap... but its the cheapest of the medical references. It isnt the most upto date... but it doesnt absolutely have to be if you want to cover a lot of the basics your GP should be looking into. I havent bought it yet, it is pricey. : )

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    Quote Originally Posted by Linda From Australia View Post
    Giggle will you please message me the name of the medical book and where you got it from. It will help me understand Lupus a bit more, and also my GP has admitted she doesn't know much about Lupus. She did a big read up before I went to see her after I was diagnosed. I think I will get the book, and if I am sick and feel it is Lupus related, I could photocopy the relevant pages, or if it isn't too expensive, buy the book for her. She said that she has only one other patient with Lupus, no wonder she doesn't know much about it.
    I have The Lupus Book by Daniel Wallace, MD. He actually has actually revised it twice since I was diagnosed 12 years ago, so make sure you get the most recent edition. It is the only medical text book written specifically on lupus that I have been able to find. On Amazon I think it is around $30. Some chapters seem a bit incomplete to me, but at least it's not just a chapter in another text book.

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    Quote Originally Posted by Gizmo View Post
    I have The Lupus Book by Daniel Wallace, MD. He actually has actually revised it twice since I was diagnosed 12 years ago, so make sure you get the most recent edition. It is the only medical text book written specifically on lupus that I have been able to find. On Amazon I think it is around $30. Some chapters seem a bit incomplete to me, but at least it's not just a chapter in another text book.
    It is a bit sparse in some areas, but overall, it's a decent book. Although there is some missing information, there's no bad information in it. Dr. Daniel Wallace is a fairly sharp guy on the subject of Lupus.

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    I have that as well... but need an actual medical reference for the doctors.
    The lupus book is a bit... simple. I have read reviews, they typically say that it is easy to understand.
    Well Im not going to touch a book with reviews that say 'easy to understand' ever again. I think it is a common thing for people to say when they have a bit of trouble understanding medical terms and concepts. I am far from uncomfortable with medical terms and language.
    I rather find the language used to make a book 'easy to understand' underwhelming... condescending... and hard to even bother reading. I would recommend it to newly diagnosed because any info would be like gold to them... but I think Im at the stage now I am looking for answers that only something rather intensive would be able to give me.

    I really do wish circumstances had led me to a medical profession LOL

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    Hi giggle, you make me smile. I wanted to be a psychologists, but lots of babies and illness changed that. You are so smart, use your gifts and grow in spite of circumstances as best you can I am old and sick but I keep learning. I have to keep going to trainings in order to keep my certifications. I also have a learning disability, but I never let it stop me. Not even brain fog! Determination girl! I can't be a psychologists, but I can be the best psych rehab specialist I can be. Just a little cheerleading here (grin). You could become an advocate for people with lupus!

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    Hi Giggle,

    You made a good point refering (I am far from uncomfortable with medical terms and language) because when i see doctor's and they use the medical name for meds...i always say, come out and say the other medical name which patients know i.e Carbamazepine is Tegretol but oh no they have to use Carbamazepine because they think they're throwing you off meds you dow understand.

    I hope your feeling abit better today mate and holding your chin up. xxxxxx
    Last edited by Peridot20_Gem; 06-24-2011 at 07:48 AM.

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