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Thread: how long did the specialist say you would need to be on plaquenil!!??!!

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    Default how long did the specialist say you would need to be on plaquenil!!??!!

    I have been to three different GPs now that ask the same thing.

    Shouldn't they know?

    Every single time I hear this question I have a four stage reaction...

    stage 1. Surprise, I never expected this question
    stage 2. I question myself... did the specialist tell me how long?
    stage 3. Hope. Maybe if she is asking me this, it means I might one day be off the medication!?
    stage 4. ANGER. Finally I remember what my rheumatologist said to me... that fateful day I was diagnosed. "You will be on this medication for life..."
    I am furious that for a second I was given hope, that for a second I doubted myself, that in a second my GP proved to me they dont take my disease seriously or know the first thing about it or my medication.

    I always pause. There is up to ten seconds of silence from the time they ask, to the time I answer.

    "For life" I say, in a rather short tone. I immediately feel defeated.

    Has anyone else been asked this stupidest of stupid questions by a health 'professional'?

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    For a moment I thought you were asking us this. Then I thought, MY GOSH, I thought giggle would know that simple question.
    Then I saw that you were talking about your doctors. Oh dear, that is a real worry!!!!
    Diagnosed with Lupus - 22 June, 2010

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    Hi Giggle,

    I've had all this total stupidity with different specialist's over the years they look at us like we're the ones losing our MARBLES and i think they just test you to see how fare you can go into remembering but what they dow realize is they're the ones making cock ups with us, it's so annoying mate. xxxx

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    Its shocking isnt it Linda... and it hurts deeply every single time I hear that question. Makes me feel almost unjustified at first... and then angry. Common sense surely would bring anyone to the conclusion that a lifetime illness will require lifetime treatment.

    I am buying a lupus medical reference. It will live with my current GP for now. When I move to Brisbane, I will take it with me and I will make a number of visits to various GPs asthough they were job interviews. I will give them my full medical history and documents and ask them if they are willing to take on a patient such as myself and my daughter, even though it means learning more about our conditions and working with specialists.
    The successful GP will then become the new keeper of my lupus medical reference and will become my regular GP.

    Terry... I've decided no more Miss nice guy : ) When I finally move to somewhere where I am not limited to a choice of one GP... I will hold interviews lol

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    Giggle,

    Fare play to you mate, i look at it like this it's our body's and when GP's or specialists are treating you because they're in the field for the work then they should go out their way to test the patient to the best of their possibilities and then when it comes to medication you should be told how long your on it for.
    I don't blame you treating them as proper interviews either, i've been throwed off Doctor's books for speaking my mind and not letting them press the puzzer for the next patient.

    I'm behind you 100% because i can see this lots got you down through it, it's made you more determind to get somewhere. xxx
    Last edited by Peridot20_Gem; 06-12-2011 at 10:02 AM.

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    Giggle will you please message me the name of the medical book and where you got it from. It will help me understand Lupus a bit more, and also my GP has admitted she doesn't know much about Lupus. She did a big read up before I went to see her after I was diagnosed. I think I will get the book, and if I am sick and feel it is Lupus related, I could photocopy the relevant pages, or if it isn't too expensive, buy the book for her. She said that she has only one other patient with Lupus, no wonder she doesn't know much about it.
    Diagnosed with Lupus - 22 June, 2010

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    Oh Linda how you are, you do need more of an experienced doctor behind you, so really before she's seeing you she's looking up also.

    I do wish you the best with your Doctor besides getting the book if your able to.

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    Although people go off of many of the meds as they get better, plaquenil is one most stay on for life. I know a woman in my town who was diagnosed in 1992. She is doing really well now but even she is still on plaquenil. You would think the doctors would know this
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by tgal View Post
    Although people go off of many of the meds as they get better, plaquenil is one most stay on for life. I know a woman in my town who was diagnosed in 1992. She is doing really well now but even she is still on plaquenil. You would think the doctors would know this
    Well Mari,
    I really hope it's ok with me this time, i know i've only been on it since last thursday and taking it at night seems to suite me better, all i've noticed more is my temper is getting worse just talking to my hubby, good job he's got broad shoulders.lol

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    Quote Originally Posted by Peridot20_Gem View Post
    Well Mari,
    I really hope it's ok with me this time, i know i've only been on it since last thursday and taking it at night seems to suite me better, all i've noticed more is my temper is getting worse just talking to my hubby, good job he's got broad shoulders.lol
    Terrie, I am not talking about people who have problems with it as you do. I am talking about the rest of us that don't really have much trouble with or or those that are able to get the stomach issues. Those that have trouble with it will not, of course, stay on it forever
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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