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Thread: Blood tests!

  1. #11
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    Morning sharon,

    It's hot here already but you won't see me out in it. If you do go out just be careful and watch for any signis of irritation and if you do break in a flare and have a camera take some shots of it and show the rheumo, my rheumo just see's it on me so pointless doing it.lol
    Well i am pleased you got a good rest, lack of sleep can cause affects with anything linked with Lupus to make you feel worse, i started the plaquenil again lastnight so lets see how that goes again and besides my other meds, valium ontop and i've woke with a right headache.

    Yesterday was a nightmare my dermo said my bloods matched for the skin trouble to take Dapsone, then i told him i'd been on the phone to the sister asking for methotrexate which the other doctor's think would be better than plaquenil, he said i can't start you on this med because plaquenil works for both SLE/Skin trouble but i think the same as your other specialist the Methotrexate would be better in surpressing your immune system regarding my SLE, so he had me go to Rheumo and the specialist said i was to stop on the plaquenil and if it made me bad again to pull off it, then i had to go back and tell the Dermo he said ok and i'll see you in 3mths time but in the meantime i'm having a word with him.

    So it's seeing how it goes mate again. xxx

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    After having positive tests (ANA, ESR, SED and SS-B), my labs suddenly came back WNL in February, with the exception of CRP and WBC, which both remain very low.

    I understand that CRP can be loW in a SLE flare (someone correct me if I'm wrong). I am currently being evaluated for polymyositis and MS (which I highly doubt I have). My CPK and aldolase, blood tests that show muscle proteins that have leaked into the blood, are normal, which are sometimes elevated in polymyositis.

    My point being, labs don't always tell the whole story. If your doc insists on treating you based solely on labs-find another doctor.

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    Quote Originally Posted by Peridot20_Gem View Post
    Morning sharon,

    It's hot here already but you won't see me out in it. If you do go out just be careful and watch for any signis of irritation and if you do break in a flare and have a camera take some shots of it and show the rheumo, my rheumo just see's it on me so pointless doing it.lol
    Well i am pleased you got a good rest, lack of sleep can cause affects with anything linked with Lupus to make you feel worse, i started the plaquenil again lastnight so lets see how that goes again and besides my other meds, valium ontop and i've woke with a right headache.

    Yesterday was a nightmare my dermo said my bloods matched for the skin trouble to take Dapsone, then i told him i'd been on the phone to the sister asking for methotrexate which the other doctor's think would be better than plaquenil, he said i can't start you on this med because plaquenil works for both SLE/Skin trouble but i think the same as your other specialist the Methotrexate would be better in surpressing your immune system regarding my SLE, so he had me go to Rheumo and the specialist said i was to stop on the plaquenil and if it made me bad again to pull off it, then i had to go back and tell the Dermo he said ok and i'll see you in 3mths time but in the meantime i'm having a word with him.

    So it's seeing how it goes mate again. xxx
    Hey Terrie,

    Try taking the plaquenil at night with a small snack. I think you might find that you sleep through much of the discomfort. I never had any trouble but that is what I did with a medicine years ago that upset my stomach and it worked for me.

    I will keep my fingers crossed for you this time!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by tgal View Post
    Hey Terrie,

    Try taking the plaquenil at night with a small snack. I think you might find that you sleep through much of the discomfort. I never had any trouble but that is what I did with a medicine years ago that upset my stomach and it worked for me.

    I will keep my fingers crossed for you this time!
    Hi Mari,

    Besides you mentioning taking it at night, when i was on the plaquenil last time as you know i was popping it at 2pm and linda read the affects i was having and she found out like yourself taking it at night, lessoned the affects.
    Well since i started it last thursday i take my night tablets at 10 give it an hour and take the plaquenil at 11 and so far touching wood this end i've had nothing yet, so it may be ok this time round.

    Thanks mari. xxx
    Last edited by Peridot20_Gem; 06-07-2011 at 03:59 PM.

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    Quote Originally Posted by Peridot20_Gem View Post
    Hi Mari,

    Besides you mentioning taking it at night, when i was on the plaquenil last time as you know i was popping it at 2pm and linda read the affects i was having and she found out like yourself takin it at night, lessoned the affects.
    Well since i started it last thursday i take my night tablets at 10 give it an hour and take the plaquenil at 11 and so far touching wood this end i've had nothing yet, so it may be ok this time round.

    Thanks mari. xxx
    Oh how wonderful! I will keep my fingers crossed
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by tgal View Post
    Oh how wonderful! I will keep my fingers crossed
    Well Mari, no side affects like before just noticed today bad nausea and my temper rising even more, i can cope with that as i've had it with other meds.

    I'm justing hoping for no bad breathing trouble which as'nt come as an extra yet.

    Thanks for your support mate. xxx

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    Terri,
    I sincerely hope you continue to tolerate the plaquinil, and that it helps you feel better. Good luck mate (I have to giggle as I type "mate" - it's fun to see how English varies from country to country).

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    I don't think it's odd to be happy about blood test results....there is some sort of solace in them. Hell, I was uber excited just to see that my ANA reading was abnormal...then 2 months laters it had increased by a significant amount. After that i was able to tell certain people "HA!!! It's NOT all in my head you jerks!" It felt good. lol
    I've learned the hard way, that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious ambiguity.

    -Gilda Radner

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    Quote Originally Posted by Gizmo View Post
    Terri,
    I sincerely hope you continue to tolerate the plaquinil, and that it helps you feel better. Good luck mate (I have to giggle as I type "mate" - it's fun to see how English varies from country to country).
    Gizmo,

    The trouble with me being so broad in speaking from where i come from, when i type i type how i speak but some broadness as to be held back so my heads on the alert alot more and different areas in england speak different languages.lol

    I can cope with the plaquenil just as long as the breathing problems don't hit me severe and it was great with my skin last time within 5wks but i wow see nothing yet till my disgraceful mush as cleared up.

  12. #20
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    Quote Originally Posted by Glibby View Post
    I don't think it's odd to be happy about blood test results....there is some sort of solace in them. Hell, I was uber excited just to see that my ANA reading was abnormal...then 2 months laters it had increased by a significant amount. After that i was able to tell certain people "HA!!! It's NOT all in my head you jerks!" It felt good. lol
    Hi Glibby,

    Your like me where blood results am, i just love to hear the out come, so you know what's going on and there's definitely nothing weird about that mate.

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