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Thread: Feeling good even with grocery list of symtoms or infections...

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    Default Feeling good even with grocery list of symtoms or infections...

    LOL!

    Okay so this would probably sound weird to just about everybody in my life but it is a thought I had yesterday and giggled to myself. Then I figured just about the only people who would get what I meant were likely in here...

    So I will start by saying, I still consider myself a "lucky" lupus patient. My symptoms have not really been scary in the past and aren't now.

    I have now been on Plaquinil for 4 mos and I really am starting to feel better. I no longer have almost daily migraines and my energy leve is improving.I can participate in family life after a full day of work. I am more involved in my son and husband's evening routines, etc. Yeah me!

    Then about two and a half weeks ago, I started getting hit with infections, laryngitis, an ear infection, etc, etc. I took anti-biotics and got my voice back but things have been a little haywire ever since.

    So yesterday I was in my room taking "inventory" and here is my current shopping list of issues, (sorry for the TMI re: female stuff later in list)

    Pink eye
    Mouth ulcers
    Ear pain
    Swollen lymph node in neck
    Sore throat/trouble swallowing
    Raspy voice
    Rash (sun-related despite SPF 60) over forearms
    Yeast infection
    Seperate rash of unknown origin on my toes - extremely itchy

    And after taking "inventory", I thought to myself and yet, this is a good day! I feel so much better than I did 6 months ago and before my diagnosis. LOL....It's amazing how one's perspective changes isn't it?


    Thanks for letting me say it to someone!

    (Just a note, I saw my GP when it all started and I go back to my rheumy in about 2 weeks for a check-up so I am just rolling with it for now.)

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    LOL Isn't it funny how our perceptions changes ans what become to see a a "good day"? LOL Lovin you right now Bunny!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Every day seems to be a surprize. Bonita

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    When people ask me, " How are you doing? I honestly say, "Good! How about you?" Then I walk away and remember, my feet are swollen, I gained 30 pounds in months, I'm so brain fogged and on so many pain meds I can't remember I am sick! Lol

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    Quote Originally Posted by lovedbyHim View Post
    When people ask me, " How are you doing? I honestly say, "Good! How about you?" Then I walk away and remember, my feet are swollen, I gained 30 pounds in months, I'm so brain fogged and on so many pain meds I can't remember I am sick! Lol
    LOL I am so glad I am not the only one that does that! Then I wonder why people don't get that I am sick!!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    I think it's a natural response to say "I'm fine" if people ask us how we are. Mainly cos if we really told them they'd look at us funny and suddenly remember something important they had to do!

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    Lol this is solo true! Imagine our true response, "well let's see...my gums are bleeding, I have ulcers in my mouth, my hair is falling out, joint ache, muscle spasms, head hurts & rash that won't heal. How about you?"

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    when people ask me how i am feeling.....
    i like to reply with...............

    do you really want to know?
    or are you just being polite!

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    Long long ago I worked in a residential drug rehab facility and there is an actually definition for FINE. Aerosmith actually wrote a song about it. I think of it every time I say that I am "fine" Please don't get offended I just had to share because of this thread.

    F****D up
    Insecure
    Nerotic and
    Emotional

    Fits me on some days! LOL
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    For me, truly pain free days are a rarity, but over time, I guess I've just learned to ignore the milder stuff. The joint pain and other minor aches just get pushed to the back of my mind, like they are just background noise. And after having dealt with the hell that is a Trigeminal Neuralgia Flare, my perception of what real pain is, has changed dramatically. Many things I used to find excruciating, have been bumped way down the list of what really hurts.

    Rob

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