HELLO EVERYONE

MY NAME IS CATHY AND I AM A NEWBIE..I FOUND THIS SITE LAST NIGHT AND DECIDED TO GIVE IT A GO! I HAVE HAD LUPUS SINCE THE DARK AGES...1981. ALTHOUGH I CAN TRACE THE "GROWING PAINS" AND SEVERE FATIGUE TO MY CHILDHOOD. I HAVE LIVED WITH THIS FOR 24 YEARS UNTIL RECENTLY. I HAVE LITERALLY BEEN KNOCKED ON MY BEHIND BY IT. TO THIS POINT I HAVE BEEN SO LUCKY WITH ONLY 2 HOSPITALIZATIONS, BOTH LUNG INVOLVEMENT. I HATE HOSPITALS (EVEN THOUGH I WORK AS A NURSE IN ONE). NOW I AM ON A LONG TERM LEAVE WAITING TO GET WELL. I AM SO FRUSTRATED AND FEELING USELESS, I USED TO BE ABLE TO WORK LIKE A MAN. NOW ITS A CHORE TO GO TO THE BATHROOM. MY HUBBY IS COOKING AND CLEANING ALONG WITH WORKING 6 DAYS A WEEK. I LOVE HIM MORE EVERY DAY... SO HOW DOES A PERSON COPE WITH THE FEELING OF USELESSNESS, THE ISOLATION, MISSING YOUR CO-WORKERS AND LEADING A NORMAL LIFE? I'VE ALWAYS LOOKED AFTER OTHERS AND NOW I NEED LOOKING AFTER....IT SUCKS!!!!