Page 1 of 2 12 LastLast
Results 1 to 10 of 19

Thread: Dazed & confused

  1. #1
    Join Date
    May 2011
    Location
    Texas
    Posts
    12
    Thanks
    7
    Thanked 0 Times in 0 Posts

    Default Dazed & confused

    Okay, I'm not a complainer. Have had aches & pains most of my life so just always thought that was normal & everyone felt that way. But still no diagnosis so kind of feel like I am in limbo. Should I journal every little thing. Dont want to be paranoid but feel like when I go to rheumy I cant answer his questions because I have always just ignored this stuff, so I cant seem to remember the details. I know everybody is different but could some of you try to describe how "fog" feels or effects you? And I have for awhile now been thinking that I was just being lazy but is that the fatigue? On Thurs. I had worked pretty hard most of the day (and really didnt eat much) & just sudddenly felt like if I didnt sit down I would just collapse. Never happened before. Thanks to everyone for sharing your stories & info

  2. #2
    Join Date
    Jun 2010
    Location
    Perth Western Australia
    Posts
    709
    Thanks
    9
    Thanked 182 Times in 116 Posts

    Default

    Hi Maw Maw, I will spend a bit of time answering your question, but I'm afraid it is going to have to be tomorrow. It is getting late here in Australia and I need to go to bed now. I will tell you though that I know how you feel. When I first went to see my Rheumatologist, he would ask all these questions and I felt so dumb because I would say "I don't really know" The one advantage that I had was that I was already diagnosed with Lupus through blood tests and a skin biopsy. So now when I go I can add more information as I start to understand more and more about Lupus.
    Diagnosed with Lupus - 22 June, 2010

  3. #3
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Hello MawMaw,

    Welcome to WHL and nice to have you with us.

    We all have the symptoms your refering to and it drags you down badly and the reason why you felt like you could have collasped the other day while working is because the aching and pain can get to the extreme, where you have to learn to pace yourself out and on those better days when there's not so much foggyness put more into what your able to do then.

    Writing down what's happening to you is great for when you see your Rheumo and fire the questions, As your Rheumo done bloods to see if you have an autoimmune diseases besides Lupus?? but always remember this if you do have any issues connected to Lupus the bloods can fluctuate your blood and give off false readings, so it's a grin and bare case of keep having bloods done till something shows.

    It will be nice getting to know you Terri xxx

  4. #4
    Join Date
    May 2011
    Location
    Texas
    Posts
    12
    Thanks
    7
    Thanked 0 Times in 0 Posts

    Default Thanks

    Thank you, Terri & Linda.
    I am new to all this & your info is very helpful.
    Laura

  5. #5
    Join Date
    Feb 2011
    Posts
    2,036
    Thanks
    345
    Thanked 365 Times in 315 Posts

    Default

    Hello Laura,

    Your welcome from us both and Linda will be intouch when she's back on line, she's a lovely person.

    It may be new to you but by joining in the threads and commenting you'll learn so much about the Disease and other issues that can come with it and if your ever feeling down just come on and make a new thread and vent as someones always on line to either answer you or help in one way or another.

    I'll enjoy getting to know you. xxx

  6. #6
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,741 Times in 1,211 Posts

    Default

    Hi There! I am going to give you a link to a discussion we had here awhile back. Hope this helps answer your question! Feel free to post in it or come back here for more discussion!!

    http://forum.wehavelupus.com/showthr...t=lead+blanket
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  7. #7
    Join Date
    Nov 2008
    Location
    hervey bay queensland australia
    Posts
    1,139
    Thanks
    150
    Thanked 205 Times in 175 Posts

    Default

    hi laura welcome whl we all experience similiar symptoms sometimes the pain and fatigue can be so overwhelming and the brain fog i agree with with everyone i find the only way to explain to doctors is to keep journal of how you are feeling and if any one thing makes you worse good luck and wish you well with getting the answers you need and just remember we are here for you when ever you need to talk hugs kim l

  8. #8
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,741 Times in 1,211 Posts

    Default

    My fog is bad today and I completely forgot to answer the journal part! While trying to get a diagnosis I think it is imperative that a journal is kept. I also had a 1 page essay of sorts that I handed to every doctor that I went to see. It was a brief overview of my life during this illness. Blisters, fatigue, headaches, rashes, whatever. I hand that and a typed out page of every test result that I have had come in "out of range". Don't give that to the nurse, give it to the doctor while he is standing in front of you. They can ignore the file but they will usually read those since you are sitting in front of them,

    I also get copies of not only the lab results but the entire chart every doctor has on me and even discs of my MRIs and such. Some of them costs 25 dollars but it is worth it. I have a copy of my file from every doctor and of every test. I have Discs of every MRI and CT Scan I have had. Let me tell you why I do all of this. I went to a Neurologist checking for MS. He was very dismissive and came back in and said "Well all I have is the written report of the latest MRI. I will have to get the films and you will have to come back. I reached into my notebook and handed him the disc he was looking for. He was rather shocked but he left to read them.

    You value you as a person. They see you as patients. Write it all down and then summarize a 1 sheet only transcript for them. Make them see you. It will help!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  9. The Following User Says Thank You to tgal For This Useful Post:

    steve.b (05-29-2011)

  10. #9
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,896
    Blog Entries
    1
    Thanks
    1,387
    Thanked 1,610 Times in 1,102 Posts

    Default

    hi laura,
    i am a strong advocate of the journal. i was doing one before i knew what they were.
    my rhuemy said it saved a lot of questions. he understood what i was going through.
    he has booked an extended visit for our next meeting, so we can discuss what i gave him last time.

    i strongly encourage using a journal.

  11. #10
    Join Date
    May 2011
    Posts
    54
    Thanks
    13
    Thanked 10 Times in 5 Posts

    Default

    Hi.

    All I can say is journal everything as far as aches and pains from here on out. It will help you once you get to the dr.s office...helped me for sure.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •