Hi Michele43, And welcome to WHL! And happy Anniversary! I've also been diagnosed with sle
lupus, cns vasculitis and other over lapping autoimmuine diseases with those. I was also first
put on plaquenil when my rheummys first said i had mctd and didnt know exactly witch ones i had and i also could not take the plaquenil. It took several rheummy's and neurologist and tons of test and over 7 yr's for my dr's to figure out what all i had and get me diagnosed. Becuse lot's of my test kept comming back negative, for m.s. lumbar puncture,lip biopsy for sjogrens ,
and lot's more mostly what was positive was high ana and always elevated wbc. and at times inflamation marker was elevated. I finaly got diagnosed when i had a spell where i couldent keep my balance and my legs and face went numb, had speach problems, spasams, and termors
short term memory problems and other bad symptoms sent me to the er and they did a mri of my brain to check for stroke and found 12 lesions on my brain in the white matter and from there
lot's of dr's and test and finaly diagnosed by a rheumatologist professor and neurologist professor at a big teaching university hospital. They have me on 100mg Imuran and 25mg predinsone for now to try and slow the diseases down. I do have the same problem as you with my toes going blue i also have red blood spots that pop up every where. But i have so much going on till i didnt know if my toes going blue was the vasculitis or the raynaud's.
I look forward to getting to know you, And there are lot's of wonderful careing people here.
Hope you have a good day! ~Diane~
~Where Hope Grow's, Miracle's Blossom~
(CNS) Vasculitis, Lupus, Neuro-Behcet's, Raynaud's, Fibromyalgia, Diabetes, Earley M.S., Buerger's Syndrome.