This is a really tough question. I have just been told by my physio and rheumatologist that I need to cut down on the very little physio and exercise that I am doing because of the amount of pain I am suffering. I try to do up to 2 hours of 'physio/exercise' a day to keep myself active, joints moving, and hopefully to increase and improve my health. I thought about not telling them how much pain I am in, but then at the age of 48, I thought I had better listen to them. They also told me if it hurts to swim, not to swim. So the stubborn and independent me just swims very slow instead. It still hurts, but I am determined to exercise as long as I can. Every few weeks the physio stops me from doing more and more, and changing my physio to keep my joints and muscles moving as gentle as possible.
I would like to know what medical advice you have been given, and what, if you have, changes have you made.
Diagnosed with Lupus - 22 June, 2010