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Thread: Hi! New to forum, new to Lupus!

  1. #11
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    Thank you I am seeing the other Doctor on Thursday morning. I am sleeping the majority of every day at the moment so need my iron levels checked again anyway, so think i'll ask about having other tests done at the same time. Otherwise i'll leave it till I see my regular GP, as I will be due for repeated kidney function tests etc then anyway. Though was trying to stretch my Dr visits out to 6 monthly it isn't happening!!

  2. #12
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    Gee... Im never moving to WA!!! So many WA lupus cases! LOL Is there something in the water over there?

    Welcome CJ! It sure does sound like lupus, but we cant diagnose you of course Either way you are welcome here, lupus or no lupus. I was diagnosed with lupus at 24 after the birth of my daughter. Having babies can be taxing on a ladies body!
    APS can also cause miscarriage, I suspect I have APS in a mild form or such and the tumour that my daughters placenta was attached to was the only reason she survived. Getting diagnoses has been hard for me in rural QLD and I am 29 going on 30 now and am only now getting my other issues sorted. I think you sound like a candidate for APS and/or lupus. Neither are very nice. Lets hope you get a swift diagnosis

    All you WAers should get together for a BBQ lol

  3. #13
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    Just had a look at APS and that does sound interesting, given the miscarriages, preterm births (8 and 9 weeks early) and there was also a placental abruption at 4months with my 31weeker. Fun times during pregnancy!! Unfortunately despite the miscarriages and early births no testing was done, and as i've decided no more babies (as if there is a choice) I doubt anything will be done to figure out why.

    I am originally from the NT and only down here in WA the last 9 years, so problems started up North...trying to deflect from WA here haha!

  4. #14
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    Quote Originally Posted by ~CJ~ View Post
    Thank you I am seeing the other Doctor on Thursday morning. I am sleeping the majority of every day at the moment so need my iron levels checked again anyway, so think i'll ask about having other tests done at the same time. Otherwise i'll leave it till I see my regular GP, as I will be due for repeated kidney function tests etc then anyway. Though was trying to stretch my Dr visits out to 6 monthly it isn't happening!!
    CJ, All the best mate on seeing the Doctor on thursday and Lupus does cause a large majortiy of us to sleep, mind you taking loads of meds besides does'nt help we one bit. It took them 6mths to find that my anaemia had come back as the Lupus kept saying i was ok, see what it does to your bloods and now i'm on folic acid tablets and B12 Jabs for life.

    Well all the best and keep we updated on how you get on. xxx

  5. #15
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    That is really really interesting to know. When I was younger (early teens) tests would always come back for anaemia and I was on Iron supplements...naturally I learnt the symptoms. Yet in recent years I am so sure that's what's wrong and levels come back in the 'ok' range, not brilliant but nothing major. So I just stick to my normal multivitamin supplements and carry on.

    Just reading through peoples sigs has made me realise that the sporadic issues with hyperthyroidism, tachycardia, and fybromyalgia could all be linked in there too. Never ending lists!

  6. #16
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    Hi CJ,

    Lupus or any autoimmune disease ply madness with your bloods, if your like me i knew i'd got the anaemia again same symptoms the lot and my doc was testing me and the rheumo department and the reading's was coming back 13.5 which is good for a woman 13.5/14.0 for a man 14.0/15.0 and after 6mths a letter dropped through the door on the saturday from rheumo saying i needed folic acid tablet's, a couple of months after saw the blood specialist who said you need B12 Jabs for life as Lupus eats aways what B12 gives you food wise.

    I'd still keep on pushing with them CJ just incase it's there hidding itself as that's all you need.

    Your right mate it is a never ending list and you'll really find the threads so interesting with what diseases can give you and you'll also learn so much.

    Takecare mate Hugs Terri xxx

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