How did your symptoms begin?
How did your symptoms first present?
Last edited by merryalliss30; 06-05-2011 at 01:43 PM.
The Following 2 Users Say Thank You to merryalliss30 For This Useful Post:
SandyR (05-12-2011), tgal (05-12-2011)
Great thread! I'm still in diagnostic limbo and my symptoms come and go but when I looked back, and I mean looked really long and hard, they began around 16. First was a tendonitis diagnosis and a wierd 24hr virus/fever thing (wierd for me because before that I had only ever been sick with the chicken pox). Then suddenly it was strep-throat and bronchitis outbreaks every few months and complaints from my family about my hair clogging the drains in the shower. Then it stabled off - except the hair thing - and in my 2nd year of college I suddenly developed severe IBS and Lactose Intolerance. Leveled off again for a few years and then add Allergies and Sinus issues. Now I was in my mid 20's. In the later 20's I had several sicknesses and rashes and aches that would suddenly come on and disappear. Now I'm in my mid 30's and I realize that those were flares. I've lived in 3 states and seen 5 doctors over that time and have been tested time and again for Lupus but it wasn't until about 2 years ago that I myself realized that all of these things were probably related and it wasn't ever something that "showed" in the blood, although multiple doctors have suspected me of having it.
As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.
The Following User Says Thank You to SandyR For This Useful Post:
This is a great thread! Never say you are sorry for starting discussions. That is what we do here *grins*. Like Sandy I look back and see my first flare when I was in High School. I always had many female problems and cysts etc but nothing out of the ordinary. Knowing what I know now I had a classic flare. The fatigue was so bad for about 2 weeks my mom took me to the doctor. Dr. said I had high cholesterol but that he couldn't find anything else. It eventually cleared itself up and it was forgotten.
From that point on I had some odd things happen. My hand would just drop things that I was holding and I had problems with my toes getting numb etc but nothing I went to the doctor for. The only doctor that I saw for 20+ years was the OBGYN. Then about 5 years ago my gallbadder started acting up. I NEVER went to the doctor but this was horrible and I went and they removed it. From that point on nothing has been the same (literally. I got MRSA staph while at the hospital). I still didn't go to the doctor but I kept getting worse and worse. Finally during Thanksgiving week two years ago I was taken to the ER. From that point on it has been doctor after doctor. All the things that they were asking me had been going on for years but I just thought I was getting old! Nope... I was getting Lupus!
Success is not final, failure is not fatal: it is the courage to continue that counts.
I was 26 when the fatigue started, but there are other things that were going on at a younger age, the reason I didn't mention it is because I don't feel like it impacted my health, it didn't make me feel ill or anything, but I've had hives since I was little and kept the snibbles. During my teenage years I had problems with the sun as far as it giving me headaches, nausea, and making me feel drained. At age 17, is when my anxiety started, and I'd hyperventilate, my body would get stiff and numb all over and really painful. I also went through some depression from the relationship I was in, that was bringing on the anxiety attacks. My cholesterol started getting out of wack in my early 20's. I would get bored too easy & I'd sleep it off when it would happen. When I was pregnant I think age 23, I had severe dental pain and got my first UTI. After she was born, I got some urinary frequency, but it wasn't horrible, like it was just 10-15 times a day. I also had horrible menstrual issues and I don't miss that uterus one bit. lol. I don't think that stuff really relates to why I got sick. I think maybe picking up the smoking habit at age 17 might have been a bad idea.
Great thread, Mine begin (Only guessing) 2003 with vertigo, fatigue, numbness and my legs felt like walking into cement. Then its everything now. Wish I had those days back ;-)
Wow, when haven't I had signs/symptoms?! lol When I was little they tested me for all sorts of things because of my "growing pains". I was VERY sun sensitive. I remember one time in particular that my mom wanted to brush my hair and I wouldn't even come down off the stairs cuz my scalp was burnt so bad! I've always had "arthritis" pain that would come & go. When I was about 30ish is when I think I started having issues w/brain fog & fatigue. Then came the pins & needles, chest pains & complete weakness. Oh and we can't forget the lovely vasculitis rash that I get - blech! I'm 40 now and got diagnosed 2 yrs ago, or was it 3? I can't remember anymore! LOL