You have been given some excellent advise and information. I cannot add anything better to what you've already been told. I just wanted to make sure that I welcomed you and to let you know, as others have said, that we understand and have been where you are ourselves.
Do demand that your doctors treat you..do demand that they provide you with documentation to either protect your job or to make your job provide accommodation (Lupus is listed in the diseases eligible under the ADA).
Again...welcome to our family, I am so glad that you are here and please know that we are here to comfort you when you feel that you need to cry. We do understand.
Peace and Blessings
Look For The Good and Praise It!