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    Why some never come back

    Hi All, I do not post often,but I look almost everyday at the new posts. I can't begin to tell you how thankful I am for this forum. Nobody wants to hear about your illness and if they do listen,...
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    Thanks for your reply lori. I did not take my...

    Thanks for your reply lori. I did not take my temperature i was to sick, but the other time it happen i did take my temp and it was around 97%. My body temp is usually very warm. Maybe i have some...
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    Has anyone else experienced this ?

    I had a very hard day at work on Friday and as soon as I got home I started feeling very ill. Felt like I was burning up with fever. When I got up from the bed I thought the shivering would not stop....
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    Update from doctor

    I went back to the rhuemy on the 28th and he told me almost the same thing. I defintely have an auto immune disease that is Lupus like , but he doesn't want to call it Lupus yet. Put me on Planiquell...
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    HI

    Hi All,
    I live in OKC and have not been diagnoised yet.Next rhuemy appointment on the 28th.
  6. Thread: Oklahoma

    by TERI A.
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    Okc

    Hi,
    Yes, I live in OKC. I have not been diagnosed yet. I go back to my third Rhuemy appointment on the 28th to see what he thinks it is. After reading all of the posts i do not expecta definitive...
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    Thanks to all

    Thanks everyone for your advice. My next rhuemy appointment is July 28th. I will hang in there and not get discouraged, I know there are a lot of folks in the same boat as me.
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    This is my second one. First one said my mouth...

    This is my second one. First one said my mouth sores could have come from a dirty glass.
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    Tired and Upset

    Hi All, I haven't posted in a while, but I have been reading the posts. I have been seeing rhuemys since Jan. 2009 and so far no diagnoses. The last visit they did a lupus panel and sent it to a...
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    swelling in legs

    Has anyone had swelling in their hands and legs. my dr just added an additional water pill with my blood pressure pill, but yesterday i swelled up so bad that my legs now have red rash like...
  11. Thread: Doubled ana

    by TERI A.
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    thanks for your reply phyllis, it was speckled.

    thanks for your reply phyllis, it was speckled.
  12. Thread: Doubled ana

    by TERI A.
    Replies
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    751

    I got my blood results today and I was mistaken...

    I got my blood results today and I was mistaken the titer went from 1:80 to 1:160 and the titer of 1:640 went to 1:1280. Everything else is within normal range on the Lupus panel. What do all of my...
  13. Thread: Doubled ana

    by TERI A.
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    751

    Please let me clarify, my ana went from 1:640 to...

    Please let me clarify, my ana went from 1:640 to 1:3280, it doubled he said.
  14. Thread: Doubled ana

    by TERI A.
    Replies
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    751

    Doubled ana

    rhuemy called to let me know that my ana of 1:640 had doubled within a months time and that he could do a lip biopsy for sjorgens but it probably wouldn't be conclusive. so for now he will just...
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    i was reading your posts and just had to...

    i was reading your posts and just had to comment. jody i just went to a rhuemy who diagnosed me with ra and an auto immune . ana 1640. doing a full lupus panel now. but back to my point, when i...
  16. Thanks I agree. He said my ssa was neg, but he...

    Thanks I agree. He said my ssa was neg, but he could do a biopsy to check further. I asked what could he do to help the dry mouth and he said he could give my something to help the salivary gland if...
  17. saw my rheumy today

    I tested positive for RA but he says since it doesn't take me 45 minutes to walk in the mornings i am ok right now. I tested positive for an auto immune disease, but now he is going to do a full...
  18. Thread: Oklahoma

    by TERI A.
    Replies
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    834

    Oklahoma

    Anyone from Oklahoma City
  19. Thread: Oregon

    by TERI A.
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    Oklahoma

    Wow!!!! We are a group that is spread out far and wide. Anyone else in Oklahoma City.
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    The mouse story

    The Mouse Story with a Moral

    A mouse looked through the crack
    in the wall to see the farmer and
    his wife open a package.


    What food might this...
  21. Thread: So alone

    by TERI A.
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    Thanks

    Thanks for the support my appointment is on the 16th of april
  22. Thread: So alone

    by TERI A.
    Replies
    8
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    1,089

    Thanks

    Thanks for the support my appointment is on the 16th of april
  23. Thread: So alone

    by TERI A.
    Replies
    8
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    1,089

    So alone

    I am new to the world of lupus. I have not been officially diagnosed yet, but i have posted my lab tests on line so you can see why i think it will be positive. I work with my two best friends and i...
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    Its so funny

    Reading this thread has really cracked me up. I can't believe what i am hearing. I have been having all of the speech and memory problems you all have described. I work in a childcare center and i...
  25. Thread: Just curious

    by TERI A.
    Replies
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    Just curious

    At the onset of lupus, did anyones symptoms start suddenly and if so how did it happened? I may have noticed some things, like muscle pain in various places, but thought i had a crick in my back...
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