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  1. Thread: Chemo . . .

    by CK
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    2,484

    Article

    Yes, Saysusie, I read that article, too, awhile back. They did not use that intense therapy on me. We went the low dosage route over six months, and so far so good. It is encouraging to know,...
  2. Thread: Chemo . . .

    by CK
    Replies
    6
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    2,484

    Chemo

    Yes, seems to be a truth to it. I completed 6 treatments last June & had very positive results. I currently have no protein in urine, bp normal, no joint pain. I'm not on Prednisone and have not...
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    Finished 6 monthly treatments this past June

    Hi Angie -

    I finished Cytoxan treatments in June (my first round; I was dx in Oct 2003). I am now on Cellcept & Plaquenil. I guess I am in remission. All of my test results are normal. I have...
  4. Thread: exercise

    by CK
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    Exercise

    I have found exercise to be very helpful in regaining my strength and overall health. When I was at my peak of lupus activity, I stuck with yoga and water aerobics. I was the youngest person in the...
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    Thank Missy

    Yeah, its funny how before I started this "adventure" I never paid any attention to what normal blood pressure was or what my blood work should look like. Now I treasure every day that I feel good...
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    Hi Christie D

    Sorry it took me so long to get back to you. How are you feeling? Four treatments down, 2 to go, right?!!!

    Don't worry about me & my story! I am so happy to be healthy. I am thrilled if I can...
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    I will think of you on Friday

    Christie -

    I will be thinking of you on Friday when you have your treatment. I hope it goes as smoothly as possible.

    You will look great for your daughter's graduation. My hair actually...
  8. Thread: just need to vent!

    by CK
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    Hang in there

    I was a runner, too. I know how frustrating it is to have something you love seem to be taken from you. After my dx, I tried to continue running. I was fitted for leg braces to help with the knee...
  9. Thread: New one here

    by CK
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    I only check in every now and the

    Christy -

    I only get to check in here every now and then. Hope all is well with you.

    Cindy
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    You will be fine - Christie

    Hi Christie -

    I just wanted to give you some words of encouragement. I went through almost your exact same scenario. I completed the six months of cytoxan treatments 4 months ago. Now I have...
  11. Thread: Intro

    by CK
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    Welcome Beth

    I was dx w/lupus nephritus IV & V ten months ago. I hope my story encourages you. I did six months of the monthly cytoxan and my current status is now excellent. I am virtually symptom free today...
  12. Thread: New one here

    by CK
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    welcome mommychristy

    God Bless You! I also have a 5 year old son ( and a 15 month old). I am fortunate that they are both healthy, and yet I have a tough time keeping up with them. How severe is your lupus? I have...
  13. Thread: Do I or Don't I?

    by CK
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    Hi Jean

    Jean -

    Your situation sounds very complicated. I am sorry I can't offer you any new ideas. I can only offer you my support and to let you know that I understand & wish I could help.

    CK
  14. Thread: Health Insurance

    by CK
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    Health Ins

    Hi JPJ

    I also live in Florida. Sounds like you are all set on ins. with your husband. However, it is my understanding of the law in Florida that if your employer has group health insurance, and...
  15. Thread: Health Insurance

    by CK
    Replies
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    Health Insurance

    I am just wondering what health insurance options are open to people with Lupus in the United States (since we are probably one of the only civilized countries in the world without universal health...
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    Welcome - Thing are going to be ok

    This is a wonderful site for support. Your sister is going to be ok as long as she has a good doc and follows instructions on care. Sounds like she has great family support and that is very...
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    Lupus Walk

    For those interested in national Lupus Walks. The Alliance for Lupus Research holds walks throughout the country. I participated in one this past April in Sarasota, Florida. Our location alone...
  18. Thread: New Here

    by CK
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    Do not be afraid of Plaquenil

    I was skeptical of taking yet another drug for my lupus. But I have to tell you, I have been on Plaquenil for 8 weeks and I am starting to see wonderful results! I climbed stairs the other day and...
  19. Thread: Introduce Yourself!

    by CK
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    HI Missy

    Missy - We have alot in common. I was dx with lupus nephritus in 11/03. I, too, became a domestic goddess after my dx. I am thankful that I have a wonderful husband who offers support for me to do...
  20. Thread: new and stressed

    by CK
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    Mom to toddler and preschooler

    Hi.

    I was diagnosed with lupus kidney disease in 10/03. My children are now 14 months and 5 1/2 years. I guess I am very blessed because the meds are working for me. Its tough for me to give...
  21. Thread: CELLCEPT

    by CK
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    Cellcept

    I just started cellcept on Monday after just finishing 6 months of chemo. I am on 2 mg pred every other day. I appreciate any positive info on lupus nephritus treatment. I need some happy outcomes!
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