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  1. Thread: Dating

    by Betty
    Replies
    7
    Views
    1,005

    Thank you everyone for everything you said. Its...

    Thank you everyone for everything you said. Its really good to know that I'm not alone in how insecure I feel and that there is also hope for a normal relationship.

    After getting to know the...
  2. Thread: Dating

    by Betty
    Replies
    7
    Views
    1,005

    Dating

    I met this guy a year ago and really like him then but he was dating someone else. While I was having some good days we went on a couple of dates (he split up with the gf a few months ago). I've...
  3. Replies
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    3,543

    Thanks. I hope so too. Lately we seem to be...

    Thanks. I hope so too. Lately we seem to be taking turns in the hospital (my turn).

    Have you thought about writing a book. I bet geneticists would think your history is really interesting.
  4. Thread: TMJ?

    by Betty
    Replies
    7
    Views
    1,382

    Thanks for the info. Its good to know it happens...

    Thanks for the info. Its good to know it happens to other people too. And I didn't even make the connection of joint involvement.
  5. Replies
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    996

    Thank you. I'm really grateful to finally have a...

    Thank you. I'm really grateful to finally have a place where I can go for support and people who will listen. And thanks for all the information. I'm seeing a rheumatologist next week and now I...
  6. Replies
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    i'm a full-time college student and i think i...

    i'm a full-time college student and i think i have some of the same challenges as you. i've been really lucky with professors allowing me to miss classes and make up assignments and exams. this...
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    1,380

    I take b vitamines and it seems to be the only...

    I take b vitamines and it seems to be the only thing that gets rid of the cracks in my tongue.
  8. Replies
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    3,563

    Haha! I'd live to give some of my kitties Depo. ...

    Haha! I'd live to give some of my kitties Depo.

    It was horrible for me though. I had one shot and it made me so miserable my fiance was afraid to touch me. So I guess it worked because I was...
  9. Replies
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    A few weeks ago I had terrible chest pains. I'm...

    A few weeks ago I had terrible chest pains. I'm only 27 and in very good health (other than the autoimmune disease). Before it happened I had heart palpitations and wasn't able to stand or move...
  10. Replies
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    1,607

    8 years

    My initial flare lasted two years and was followed by 8 years of remission. I'm a few months into another flare and I just have to believe I'm eventually going to go back into remission.
    ...
  11. Thread: TMJ?

    by Betty
    Replies
    7
    Views
    1,382

    TMJ?

    Does anyone else get TMJ?

    I only seem to have it when I'm flaring. Its terrible. I feel like I can't open my mouth and I have to pop my jaw 20 times a day just to be able to talk and eat. Its...
  12. Replies
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    I think you and I are two of a kind. I also have...

    I think you and I are two of a kind. I also have Celiac and the same skin condition ( I can never remember how to spell it). Sometimes I feel like my body has a new surprise illness for me every...
  13. Thread: Low Potassium

    by Betty
    Replies
    12
    Views
    3,362

    My potassiun bounces all over the place. It...

    My potassiun bounces all over the place. It doesn't seem to matter how many vitamines I take but the Ensure shakes seem to help bring it up a little.
  14. Arrrgh!

    I'm only 27 and I get serious brain fog. Sometimes I just can't understand what people are saying to me. I can hear them fine but they don't make any sense. When it happens I also can't do simple...
  15. Replies
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    1,497

    It takes some time...

    I think all the stress in my life really contributed to the flare up I'm having right now. I'm a senior in college and last semester was really bad. I was taking 21 credits, working 35 hours a...
  16. Thread: help please

    by Betty
    Replies
    5
    Views
    1,265

    Maybe you should try a different doctor. I saw a...

    Maybe you should try a different doctor. I saw a Rheumatologist for a few years who wouldn't diagnose me because I didn't have the butterfly rash even though I was +ANA and had lots of the other...
  17. Replies
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    996

    Sick but not diagnosed

    I got sick a few years ago and my Rheumatologist was pretty sure it was Lupus (+ANA, joint problems, numbness and tingling, and fatigue) but she didn't want to diagnose me because I didn't have the...
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