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Type: Posts; User: debann

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    HI, sorry you are having this problem. If this...

    HI, sorry you are having this problem. If this were me it would be my neck and shoulders causing the headache. The posture when working on a computer isn't the best. You can learn exercises to do...
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    I couldn't get on the site last week either. I...

    I couldn't get on the site last week either. I was wondering when someone would mention it. Glad it's up now. debann
  3. Thread: new to cellcept

    by debann
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    new to cellcept

    HI, I just found out my neuropathy is caused by my lupus which needs to be under better control. I'm starting Cellcept today. I'm encouraged by this and HOPE it's what will restore some of my 'old'...
  4. Thread: Feet

    by debann
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    Oh my gosh......feet! Mine have hurt for so many...

    Oh my gosh......feet! Mine have hurt for so many years and yes I have described mine as feeling like they've been pounded by a hammer. Right now I'm waiting to see the Rheumy on Aug. 21. I've had a...
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    HI Saysusie, Your are so generous with your time...

    HI Saysusie, Your are so generous with your time and your knowledge. I knew you lost your dear daughter to lupus and I'm so sorry for that. I can only imagine your grief. I don't know much about you....
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    abnormal EMG.....kind of scared

    I have lupus and it's not under the best control yet. I've been on 6 - 10 mg prednisone and 400 mg placquenil for 13 mo. now with some relief. I have burning and very painful feet on both sides the...
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    Good luck with your presentation. I think it's...

    Good luck with your presentation. I think it's really hard to find a balance that explains the seriousnous of the disease but also tells people we love our lives and are not down and depressed all...
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    Like I said I love my coffee but I can't handle...

    Like I said I love my coffee but I can't handle any alcohol with my meds. I feel weird after just one sip of a strong drink. I can drink a light beer but only one and wine gives me horrendous...
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    Hi Tadpole, that sounds very encouraging and...

    Hi Tadpole, that sounds very encouraging and discouraging at the same time. I can't imagine what you must be going through knowing there is a drug that can help you so much but you have to wait for...
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    You can ask your regular doctor to do a blood...

    You can ask your regular doctor to do a blood test called the rhuematology panal. If any thing shows up they will do further tests. It's a general test, it doesn't prove lupus or any disease. If you...
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    I love coffee with caffiene. I think your doctor...

    I love coffee with caffiene. I think your doctor has the right idea. I've tried life without coffee and it didn't seem to make one bit of difference in the way I felt except that I felt I was denying...
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    Imuran w/o organ involvement anyone?

    Hi, I've been reading posts for awhile and just joined. I've had lupus for many years but was just diagnosed a year ago. I'll post on the new members area soon.
    Are any of you taking Imuran or...
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