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Type: Posts; User: Ellie Hansen

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  1. Replies
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    I hate it when my husband says "oh there goes the...

    I hate it when my husband says "oh there goes the prednisone again!" and makes me feel like I have some mental illness. Maybe I do a little since accepting all of this has be very difficult and has...
  2. Thread: Questions

    by Ellie Hansen
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    425

    Thanks for clarifying steve! I just didn't want...

    Thanks for clarifying steve! I just didn't want to be breaking any rules. The link is "http://www.idonateplasma.com" which automatically routes to their seracare.com donor page to get more info on...
  3. Thread: Questions

    by Ellie Hansen
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    425

    Hi, I actually used to give blood pretty...

    Hi, I actually used to give blood pretty regularly until I was permanently deferred because of being diagnosed with lupus. But, I did find out from my doctor, that I could donate blood and plasma for...
  4. I'm Pregnant With Lupus and I'm Considered High Risk

    I haven't been online in a while since I've been feeling sick lately. I had to leave work multiple times over the past few weeks because I've felt weak and was vomiting and then I found out that I'm...
  5. Hi Sylver, This looks similar to what i have...

    Hi Sylver,
    This looks similar to what i have too. I currently still work in an office *crossing my fingers that I can still keep it up * and I get that type of rash on my cheeks. Luckily, since I'm...
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    Did you have your hair shed a lot first before...

    Did you have your hair shed a lot first before you noticed the patches? Like a lot more noticeable in the shower? I haven't had any patches but my scalp itches something terrible to the point where...
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    Rob already suggested it, but I wanted to let you...

    Rob already suggested it, but I wanted to let you know that ginger really does help. I have tried it, usually ginger tea and there is also a ginger supplement you can take, but I haven't tried that,...
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    Hi Mica, I can see what you're getting at with...

    Hi Mica,
    I can see what you're getting at with the cancer comparison. Since everyone is so familiar with what cancer "looks like" and everyone understands how severe and life-threatening cancer can...
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    Sticky: My cousin has sle and she goes tanning...I...

    My cousin has sle and she goes tanning...I remember she wanted me to go tanning with her before her wedding last summer (this was before I got diagnosed), and I got really badly burned. Why is it...
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    I noticed that my scalp gets really irritated...

    I noticed that my scalp gets really irritated after showering. I started using dry shampoo in between washes so that I'm not drying out my scalp too much and it seems to have really helped. I still...
  11. Thread: charli57

    by Ellie Hansen
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    Hello Charli, welcome. I am also new to the site...

    Hello Charli, welcome. I am also new to the site and went through the struggle of trying to get diagnosed and thinking I was going crazy in the process. I am happy that I joined this site last week....
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    Not everyone gets all the symptoms and signs of...

    Not everyone gets all the symptoms and signs of Lupus. People may not even test ANA positive and yet still be told they have lupus. I still don't test positive for ANA but my doctor diagnosed me. I...
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    Hi Lisa, I feel your pain - I dealt with a couple...

    Hi Lisa, I feel your pain - I dealt with a couple doctors who for over a year thought I had lyme and just kept dosing me on antibiotics and it wasn't solving anything. I didn't even test positive for...
  14. I feel like there needs to be a powerful...

    I feel like there needs to be a powerful spokesperson for Lupus. I read a post by chinadoll which made me literally cry. She wrote about her struggle in trying to get disability while she physically...
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    Sticky: Thanks for sharing this! I have a couple...

    Thanks for sharing this! I have a couple questions, as I was diagnosed only a few months ago.

    1. Why is it a problem for some of us to go in the sun? I remember my doctor said I should avoid the...
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    Hi steve, Thank you for pointing out this...

    Hi steve,

    Thank you for pointing out this thread to me - as I didn't know about it prior to my own thread posting earlier. This letter is really powerful and useful. I'll have my husband read it....
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    Hi Debbie, I currently am working as an event...

    Hi Debbie,
    I currently am working as an event planner - though I'm not sure how long I'll be able to hang in there. I know that it's not physically strenuous, but I've noticed that the stress from...
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    Thanks, Tgal, I actually didn't know that Lupus...

    Thanks, Tgal, I actually didn't know that Lupus could kill...I have had some friends recommend that I try holistic treatments instead of my doctor's prescriptions but I haven't ventured down that...
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    Sorry I just joined this website yesterday. I...

    Sorry I just joined this website yesterday. I haven't seen all the threads yet. Just felt like I needed to vent on how frustrated this has been for me.
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    My Family Doesn't Understand

    Hi everyone,

    I'm new to this website, and also new to this disease. I was diagnosed with SLE and RA in Dec 2011 after my doctor thought I had lyme disease for over a year. What has been the most...
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    Hi Krystie, I am newly diagnosed, and I am...

    Hi Krystie,

    I am newly diagnosed, and I am also a 24 year old female who is active. I love zumba too by the way! I was thinking the same things for a long time - why all the joint pain and tension...
  22. Did Your Doctor Think You Had Lyme Disease?

    Hi,

    I'm new to this website, and I am newly diagnosed with Lupus and Rheumatoid Arthritis. For the longest time my doctor thought I had lyme disease. It was frustrating because so many medications...
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    Hello! From Indiana

    Hi everyone,

    I am new to this forum, and I am also newly diagnosed. I have read a lot of Lupus forums lately, since I was given my diagnosis and I am active on Facebook pages and other sites, but...
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    Plasma donation opportunities for those of us with lupus

    Hi, I was newly diagnosed and I found out that there are a few companies that look for donors who have lupus to donate plasma. They also are looking for other autoimmune disease donors too. At first,...
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