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  1. Just wanted to post this link to a new story with...

    Just wanted to post this link to a new story with more details about her lupus:
    ...
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    Hi there! I'm currently a little over 28 weeks...

    Hi there!

    I'm currently a little over 28 weeks pregnant for the first time and as far as meds go, my doctors (rheumy, nephro, OB and MFM) have all said they are very comfortable with the use of...
  3. NBA Coach Kevin McHale's daughter dies after battle with lupus

    I was sad to read today that Kevin McHale's (coach of the Houston Rockets) 22 year old daughter had passed away. I knew he had been on a leave of absence due to his daughter being sick but never...
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    Sorry I can't give much advice about the thyroid...

    Sorry I can't give much advice about the thyroid problems but I'm with Dar on the anemia. I am borderline severely anemic right now (docs say if it gets any lower I will need a transfusion but...
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    Has anyone tried Reiki?

    My mom and aunt have recently gotten very into Reiki (or at least I think it's Reiki - they use the Chinese name for it but I'm pretty sure it's the same as Reiki) and want me to go to a free seminar...
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    Hi Nonna, Hope your antibiotics have you feeling...

    Hi Nonna, Hope your antibiotics have you feeling a little better today. I just took my first visit to the ER tonight and even though I was only there a few hours, it is definitely no fun being in...
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    lupus and adoption

    Hi all...Probably sick of hearing me talking about this but the hubby and I really want to start a family soon. The only problem is that I'm pretty sure when I see my rheumy next week he's going to...
  8. I'm trying to wean off my meds to prepare for...

    I'm trying to wean off my meds to prepare for pregnancy (although I've been told they will probably keep me on a low dose of prednisone if/when I do get pregnant) and it does seem to be having a...
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    How exciting!! Have fun =)

    How exciting!! Have fun =)
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    I definitely have issues with fluorescent lights...

    I definitely have issues with fluorescent lights - if my understanding is correct they give off UV rays which are a no-no for people with lupus. I had to ask them to remove the fluorescent light...
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    I've been having nausea issues lately as well but...

    I've been having nausea issues lately as well but I've noticed that sucking on a mint seems to help and I found some info that says mint is a natural way to combat nausea!
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    Thanks everyone!! This is why I really love this...

    Thanks everyone!! This is why I really love this place...I don't know what I'd do if I couldn't get this stuff off my chest somewhere where I know people will understand. You guys are the best =)
    ...
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    Papillon - I hope that you continue to do well on...

    Papillon - I hope that you continue to do well on your tapering! It does seem like in the long run it would be safer to be on more plaquenil and off Cellcept, I used to be on plaquenil but stopped...
  14. HGSI’s New Lupus Drug Submitted for FDA Approval

    Hi everyone,

    I thought you all might find this interesting, my husband found this article about a new drug aimed specifically at lupus that is in phase III trials and *may* be approved soon! It...
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    Having a "why me" moment

    On days like today I am even more grateful that this forum exists, because really, where else can people like us turn? It's sad to say, but no one, even the ones who love us the most and try to...
  16. Wow, that is great that CNN did such an extensive...

    Wow, that is great that CNN did such an extensive article on lupus! It's sad to say but diseases never really seem to get much attention until a celebrity brings attention to it, so hopefully having...
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    Dar - =( I wish I knew what to say other than...

    Dar - =( I wish I knew what to say other than that really sucks. It's good though, even though I'm sure you'd be happy to get off the meds altogether, that you've been able to find something that...
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    How long have you been on Cellcept?

    Hi everyone, Just wanted to see how many of you are on Cellcept and how long you have been on it? I have been on Cellcept since I was diagnosed in 2005. Last year I told my rheumy my husband and I...
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    Hi Nonna, Just wanted to let you know I totally...

    Hi Nonna, Just wanted to let you know I totally get what you're feeling...I'm feeling the same way currently. Hope everything went well with your tapering off prednisone! I am trying to taper off...
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    Just saw this Larry King Live interview with her...

    Just saw this Larry King Live interview with her where she talks about lupus http://perezhilton.com/2010-06-01-lady-gaga-talks-lupus-michael-jackson-and-the-gays-with-larry-king

    You can't test...
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    Thanks everyone for your thoughts and...

    Thanks everyone for your thoughts and suggestions, I knew this would be the best place to ask! You guys are the best! So I saw the NP and she really couldn't tell me much, she was reluctant to bring...
  22. Thread: Aches

    by the wingless one
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    Hi Sarah, Do you know why they are tapering you...

    Hi Sarah, Do you know why they are tapering you so quickly if you're still having pain? I could be wrong since this was like 5 years ago but I think I was on 40mgs for at least 2 weeks if not a...
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    Thanks Marla. I did wonder if that was what she...

    Thanks Marla. I did wonder if that was what she was getting at when she told me to take a pregnancy test but I'm sort of in denial about it. It definitely was very scary and unlike anything I've...
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    Very strange period...

    Hi all, I'm not sure if this is the right place for this...and I apologize in advance for the graphic-ness of it but I'm not really sure where else to go and ask about this...

    Basically I'm having...
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    Hi Renan, Full disclosure I am NOT a doctor or...

    Hi Renan, Full disclosure I am NOT a doctor or anything like it! But I did look into high elevations and lupus a little bit recently when I was debating whether or not to go on a ski trip recently. ...
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