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    I get those sharp bursts of electricity too. I...

    I get those sharp bursts of electricity too. I don't know what causes them either, but it's nice to know I'm (We're) not alone! Sometimes mine are followed by or along with a muscle spasm. They get...
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    I called the Rheumy today to find out the results...

    I called the Rheumy today to find out the results of my blood test. The nurse said my bloodwork came back normal (I noticed the Rheumy checked for Sjogren's. At least that's one less disorder off the...
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    Hi mdawncooper, Thank you for your support!...

    Hi mdawncooper,

    Thank you for your support! This has been a confusing journey. I'm thankful my GP/PCP is so pro-active with getting me help. I hope we can come to a definite diagnosis soon because...
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    Hi Lisa, (((hugs))) I was nervous when I went...

    Hi Lisa,

    (((hugs))) I was nervous when I went to the Rheumy my first time. I wasn't sure if he would find something else (which he did), but now that I know I can get help/medications. Still in...
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    Hi charcross, Welcome! :) We are all here...

    Hi charcross,

    Welcome! :)

    We are all here for you. I'm fairly new, but have found this group, like debbie says, to be an extended family. It's nice to have people to lean on who understand...
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    Happy Birthday debbie-b!!!

    Happy Birthday debbie-b!!!
  7. Oh, there's more of what I've been going thru and...

    Oh, there's more of what I've been going thru and some fantastic advice in the post "Conflicting Doctors". If you have time, please read it. The advice given really helped me!
  8. Hi mrstjscott, (((huge gentle hugs))) I...

    Hi mrstjscott,

    (((huge gentle hugs)))

    I know exactly what you're going thru!!! I'm going thru the same thing! My GP/PCP diagnosed me with Lupus one month ago. I went to see a Rheumy the other...
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    Hi Shine, My rash lasts for days even weeks....

    Hi Shine,

    My rash lasts for days even weeks. It depends on what I've been doing. If I've been in the sun, it gets worse. It looks like I'm blushing or have bad sunburn sometimes. My mom commented...
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    Hello Hellena, I agree with everyone else -...

    Hello Hellena,

    I agree with everyone else - definitely bring this picture to your next appointment!

    My rash is usually faded when I go to the doctor too, but luckily before one of my...
  11. I ditto not needing the appetite stimulant :D lol

    I ditto not needing the appetite stimulant :D lol
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    Hello again, Marla :) It's definitely...

    Hello again, Marla :)

    It's definitely frustrating when a doctor talks down or ignores you! It makes it even worse when they start to talk down about your previous doctors, the doctors who did...
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    Hi Debbie :) Wow, I don't know what I'd do...

    Hi Debbie :)

    Wow, I don't know what I'd do without massage. My close friend usually does my massage and I can tell her if it's too hard or too soft. But what I like about her is she doesn't just...
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    Hi chinadoll, Thank you so much for sharing...

    Hi chinadoll,

    Thank you so much for sharing and for the information! I showed it to my mom and I think it made her realize even more what it's like to have an autoimmune disorder. She knows what...
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    Hi Desley! Great idea! Thank you for sharing!...

    Hi Desley!

    Great idea! Thank you for sharing!

    We have one of those, but the things inside that do the massaging are horrible! They make my back hurt even more. I guess I'll have to go get a...
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    Hi Hunniebun, You were very helpful! Thank...

    Hi Hunniebun,

    You were very helpful! Thank you! I really do appreciate it! Talking with everyone is making this whole process a lot easier and makes getting answers a lot easier as well.

    Wow,...
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    Hi Marla, Great! Thanks! A couple of friends...

    Hi Marla,

    Great! Thanks! A couple of friends of mine do Lomi (Hawaiian massage), so I'll probably go to see them more often. Will definitely do more stretching too :)

    Thank you again!
    ...
  18. Hello Tammy, I'm not on any medications myself...

    Hello Tammy,

    I'm not on any medications myself right now or know a lot about plaquenil, but if your doctor agrees with you, then why not? Do what you have to for you.

    I've known a few people...
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    Hello again steve.bryce! Thank you for...

    Hello again steve.bryce!

    Thank you for sharing!

    I missed the other post for some reason or I would have read it a lot earlier. I've been having a lot of finger pains as well. They feel like...
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    "anal/cranial inversion syndrome" - I have to...

    "anal/cranial inversion syndrome" - I have to remember that one! LOL.

    Thank you for the laugh!

    This definitely will be a great year!

    Blessings, Love & Aloha,
    Ty :)
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    Hello Marla! I've come to realize just how...

    Hello Marla!

    I've come to realize just how often doctors don't agree. It's really frustrating because I want a definite diagnosis - not because I want the "label", but because I want help. The...
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    Lisa, I absolutely agreed with ruziska also! ...

    Lisa,

    I absolutely agreed with ruziska also!

    Good luck! *Hugs*

    Blessings, Love & Aloha,
    Ty :)
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    Hi littledove, First of all - Welcome to the...

    Hi littledove,

    First of all - Welcome to the group! :) It is definitely scary to have all of these things going on with your body and you don't know what's going on. I can't answer all of your...
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    Hunniebun, Thank you for responding :) ...

    Hunniebun,

    Thank you for responding :)

    Thank you for clearing that up! I have all of the symptoms of Fibro including pain at some of the pressure points, but I guess I just got too comfortable...
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    Conflicting Doctors

    I'm really confused now. I finally went to the Rheumy today (my first time ever). I wasn't comfortable at all with this doctor because he had no personality. I didn't see him smile once - not even...
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