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  1. Replies
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    Solu Medrol infusion or injection

    Hi gang,

    So blood pressure has been high and so is my Anti-DNA so my nephrologist wants me to get methylprednisone. Have folks gotten injections? Any tips on infusions?
    Thanks.

    Best, Elizabeth
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    Thanks for the suggestion. I am African American...

    Thanks for the suggestion. I am African American so I am sure of it is purple but it is darker than my skin and mottled and shows up around my knees and in the front of the my legs in the morning. It...
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    I did the IV push and for me it burned a little...

    I did the IV push and for me it burned a little at the injection site so ask the nurses to slow it down if you need it but the dr insisted it let me go home early. Yay for the relief!
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    So confused by skin discoloration

    Hi

    I am sorry that i only come here when something is wrong. In my defense, when something is wrong, it is great to ask a grouP of people in the same situation. Ignoring that disclaimer...
    The...
  5. Thread: Celcept

    by papillon
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    I had to eat something when I started Cellcept...

    I had to eat something when I started Cellcept plus I was also on prednisone so eating regularly was crucial to not be nauseated or miserable all day. Talk to your Dr because mine gave me permission....
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    Joint pain suggestions

    My knees and toes are throbbing. I was wondering if y'all had any suggestions. There is no swelling and I have raynaud's so I am avoiding hot or cold treatments. What has worked in the WHL world?
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    Dealing with loved ones

    I got diagnosed in January 2007. My now-husband, then-boyfriend was amazing. He did tons of research, kept me upbeat and met all my doctors. He continues to be super-supportive and a great motivator....
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    Anyone here living in New Orleans?

    Philly had a nice Lupus community but so far haven't found anything here in the NO. Let me know if anyone's around the Big Easy.
  9. Hi Brittanee, When I first got diagnosed I got...

    Hi Brittanee,

    When I first got diagnosed I got out of bed once, rolled my ankle and almost passed out from the pain. I found an article on line where a nurse fainted when she bumped her funny...
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    Thanks guys. I'll make a dr. appt soon. A few...

    Thanks guys. I'll make a dr. appt soon. A few years back they said I did not have sjorgen's but stuff gets misdiagnosed or just missed all the time. I'll let you know how it goes.
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    Hi Derek Cellcept Can be rough on the stomach...

    Hi Derek

    Cellcept Can be rough on the stomach so check with your doc about the best ways to pair it with food. Plaqueneil can give you a headache at first but it's really bearable after a while....
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    Sores in mouth

    Hey forum friends,

    So my rheumy always asks if I have any sores in my mouth and usually I say no but recently I have found that my tongue has sore spots like I bit it but I don't remember biting...
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    Hey Linda, I am so sad that things are rough...

    Hey Linda,

    I am so sad that things are rough for you right now but excited that you have such a great support group amongst your colleagues. I also work with youth and I really try very hard to...
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    I had vision problems when I got diagnosed in the...

    I had vision problems when I got diagnosed in the midst of a flare. I have crappy eyesight to begin with but had a weird fanning ripple at times. They found scarring on my cornea but with all the...
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    I agree with steph87 that the tough part about...

    I agree with steph87 that the tough part about weaning is the psychological part. I was nervous going off prednisone and tapering off cellcept I've been anxious about little things like a cold that...
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    I've been on cellcept for three years. I have...

    I've been on cellcept for three years. I have been begging to get off it. I started at 2500 and I'm down to 500. Some joint stuff this month but my rheumy upped my plaqueneil because she wants me off...
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    hi there my kidney damage meant i was on a...

    hi there

    my kidney damage meant i was on a statin for about 6 mos. i was on lipitor most of the time but tried two others first. the side effects weren't great on the first two but lipitor was ok....
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    Can we share success stories?

    I'm training for a triathlon. Who would have thunk it since 2 years ago I was in a hospital getting a kidney biopsy.
    http://pages.teamintraining.org/epa/nattri09/evictor

    I just thought it would...
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    Generic Cellcept

    Anyone on it? Any news about it?

    I know the transplant folks are avoiding it but Cellcept is EXPENSIVO.
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    yay :lol:

    yay :lol:
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    I completely agree SITC, It was 45 today and I...

    I completely agree SITC,

    It was 45 today and I was bouncing off the walls happy. Thankfully, I think the Plaq is supposed to kick in just in time for MOVING TIME. Which I am bout hexcited about...
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    What does provigil do? What is it?

    What does provigil do? What is it?
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    Thanks for the replies guys. With the ER visit I...

    Thanks for the replies guys. With the ER visit I will be seeing all my docs really soon. (Funny how quick you get a follow up ER appt but how long you wait for normal appts.)
    I'll see how my rheumy...
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    Hey cranbryclud, I was just wondering how you...

    Hey cranbryclud,

    I was just wondering how you were doing.
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    Praying as well

    Praying as well
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